LungLoveLink

Linking you to resources and support in the lung cancer community!

LungLoveLink, an online community linking you to resources and support in the lung cancer community, is sponsored by Lung Cancer Alliance.

Members

Forum

Introduce Yourself!

Welcome! Please tell us who you are and why you are here.

130 discussions

Non-Small Cell Lung Cancer

For anything related to non-small cell lung cancer.

313 discussions

Small Cell Lung Cancer

For anything related to small cell lung cancer.

37 discussions

Caregiver Corner

For caregivers to share the ups and downs.

77 discussions

CAM/Nutrition

For info about Complementary and Alternative Medicine, and nutrition.

19 discussions

Share the Good News

For when we have a reason to celebrate and want to share it.

43 discussions

Life after Treatment

For those who are figuring out life after cancer.

50 discussions

General Lung Cancer

For those discussions that don't fit neatly into another category.

84 discussions

Memory Wall

For those we've lost. Please tell us about them.

30 discussions

Website Feedback/Technical Support

For when things don't work or we have questions about how they do.

8 discussions

 

Latest Activity

Robyn replied to Robyn's discussion non small cell lung cancer stageIV squimish cell with EGFR mutation
"Thank you John.  I need the positive words.  "
yesterday
MARIAANGEL33 is now a member of LungLoveLink
Monday
John H MOD replied to Robyn's discussion non small cell lung cancer stageIV squimish cell with EGFR mutation
"Hi Robyn, I'm not positive if I'd call it the new normal but it does happen. Before you go crazy try and stay calm and wait till you have definitive information. Spots can be a lot of things. And you could be treated for it all and…"
Monday
John H MOD posted a discussion

Issues I'm having

Hi , I just posted a response. But I had started to write a response but had to leave the discussion to find a fact . When I came back to the discussion it was gone. Now I'm pretty sure I've done this before ,maybe by luck I was able to do it. But…See More
Sunday
John H MOD replied to stage4survivor's discussion Still kickin'
"Hi Michelle, I know the LCA has known of some issues with getting around on the site. In fact they are going to make some changes in the very near future. If anyone has any suggestions or comments on what is making it difficult please post. I think…"
Sunday
John H MOD replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"I know we had no one even thinking what was going to be an issue. I think most doctors and even lately are so surprised when you pass the 5 year mark it's like what are you complaining about. We got you this far. I've felt like I've…"
Sunday
Caden replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"This is a good thread.   I didn't get after treatment advice...   I don't think anyone expected there to be an after treatment!   Like you, John, most of it was focused on the here and now, not the…"
Sunday
ChelleG replied to stage4survivor's discussion Still kickin'
"I agree. I came here because of the same reasons. Still working on the format myself. Michelle"
Sunday
Robyn posted a discussion

non small cell lung cancer stageIV squimish cell with EGFR mutation

Hi,  I hoping someone else here might have had something similar.  I was Diagnosed in Sept of 2013 had radiation and Chemo to shrink the 29mm tumor on my broncili tube and several speckled nodules in lungs.  In Feb 2014 I was told NED  Went for a…See More
Thursday
AmyLCA posted a blog post

Live Near Philadelphia? Research Study on Lung Cancer and Depression

Hello!A researcher at Fox Chase Cancer Center asked us to post her study. It requires attending an in-person session at the cancer center, which is in Philadelphia, PA. If you live nearby and are interested, please contact them at the email address…See More
Thursday
Profile IconSueB and Robyn joined LungLoveLink
Thursday
John H MOD replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"Awesome tips Denise. I think that is what I was hoping for that out there someone had begun to realize that we need some after care and maybe a little concern too.I hope we can find more suggestions Still Smiling,  John"
Thursday
John H MOD replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"Hi Michelle, Boy I remember how you are feeling. It occurs to a lot if not all of us after treatment ends and we're on our own. IT is the intensive care and control that takes place as we are going through treatment then its gone, poof ypou are…"
Thursday
Denise replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"John, I strongly agree with your statement that its up to us to help the next survivor. I still have issues related to treatment: neuropathy, tinnitus, breaking bones, pleural and pericardial effusions, fatigue. Occasionally, I get that fear that a…"
Thursday
Denise replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"There is a program offered at Cancer Support Community (formerly Wellness Community), Gilda's Clubs and some hospitals called Cancer Transtions. It cover all phases of survivorship including financial, nutritional, exercise, general health and…"
Thursday
ChelleG replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"Hi John, I am still in the what's next phase. I am a year out and have acute anxiety. I am in therapy, a yoga class and seeking a support group. There are support groups for people in treatment but I haven't found one for survivors…"
Apr 17
John H MOD posted a discussion

Did anyone receive a survival plan for life after cancer?

I know I've read a little bit about the plan for survivors that we should get when your treatments are over. It is suppose to contain the do' s and dont's that cancer patients need to do and watch out for. It should be specific to your type of…See More
Apr 16
Denise replied to stage4survivor's discussion Still kickin'
"Oops. Not reading my msgs. Sorry! Chris, I just sent a friend request."
Apr 15
Profile Iconpupton, lindab, AlRose and 1 more joined LungLoveLink
Apr 15
AmyLCA replied to Praying4mama's discussion Chylothorax
"Hi there!  I wish I had answers for you. I don't know if a pleurodesis is used in this situation - based on a little bit of reading I did, it is a procedure that is sometimes used along with the thoracic duct ligation (I assume the same as…"
Apr 15
 
 
 

Blog Posts

How do you decide place of treatment?

Posted by firstladygonzo on January 16, 2014 at 4:01pm — 5 Comments

Wow what to do

Posted by Carolyn on January 3, 2014 at 7:40pm — 8 Comments

New members

Posted by AmyLCA on January 2, 2014 at 10:04am — 2 Comments

An Interesting Journey...

Posted by stage4survivor on December 11, 2013 at 3:30pm — 5 Comments

Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing patient support and advocacy for people living with or at risk for the disease.

If you have questions or need assistance with LungLoveLink, please email lunglovelink@ lungcanceralliance.org or call 1-800-298-2436

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