LungLoveLink

Linking you to resources and support in the lung cancer community!

LungLoveLink, an online community linking you to resources and support in the lung cancer community, is sponsored by Lung Cancer Alliance.

Members

Forum

Introduce Yourself!

Welcome! Please tell us who you are and why you are here.

130 discussions

Non-Small Cell Lung Cancer

For anything related to non-small cell lung cancer.

313 discussions

Small Cell Lung Cancer

For anything related to small cell lung cancer.

37 discussions

Caregiver Corner

For caregivers to share the ups and downs.

77 discussions

CAM/Nutrition

For info about Complementary and Alternative Medicine, and nutrition.

19 discussions

Share the Good News

For when we have a reason to celebrate and want to share it.

43 discussions

Life after Treatment

For those who are figuring out life after cancer.

50 discussions

General Lung Cancer

For those discussions that don't fit neatly into another category.

84 discussions

Memory Wall

For those we've lost. Please tell us about them.

30 discussions

Website Feedback/Technical Support

For when things don't work or we have questions about how they do.

7 discussions

 

Latest Activity

Robyn posted a discussion

non small cell lung cancer stageIV squimish cell with EGFR mutation

Hi,  I hoping someone else here might have had something similar.  I was Diagnosed in Sept of 2013 had radiation and Chemo to shrink the 29mm tumor on my broncili tube and several speckled nodules in lungs.  In Feb 2014 I was told NED  Went for a…See More
yesterday
AmyLCA posted a blog post

Live Near Philadelphia? Research Study on Lung Cancer and Depression

Hello!A researcher at Fox Chase Cancer Center asked us to post her study. It requires attending an in-person session at the cancer center, which is in Philadelphia, PA. If you live nearby and are interested, please contact them at the email address…See More
yesterday
Profile IconSueB and Robyn joined LungLoveLink
yesterday
John H MOD replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"Awesome tips Denise. I think that is what I was hoping for that out there someone had begun to realize that we need some after care and maybe a little concern too.I hope we can find more suggestions Still Smiling,  John"
yesterday
John H MOD replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"Hi Michelle, Boy I remember how you are feeling. It occurs to a lot if not all of us after treatment ends and we're on our own. IT is the intensive care and control that takes place as we are going through treatment then its gone, poof ypou are…"
yesterday
Denise replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"John, I strongly agree with your statement that its up to us to help the next survivor. I still have issues related to treatment: neuropathy, tinnitus, breaking bones, pleural and pericardial effusions, fatigue. Occasionally, I get that fear that a…"
yesterday
Denise replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"There is a program offered at Cancer Support Community (formerly Wellness Community), Gilda's Clubs and some hospitals called Cancer Transtions. It cover all phases of survivorship including financial, nutritional, exercise, general health and…"
yesterday
ChelleG replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"Hi John, I am still in the what's next phase. I am a year out and have acute anxiety. I am in therapy, a yoga class and seeking a support group. There are support groups for people in treatment but I haven't found one for survivors…"
yesterday
John H MOD posted a discussion

Did anyone receive a survival plan for life after cancer?

I know I've read a little bit about the plan for survivors that we should get when your treatments are over. It is suppose to contain the do' s and dont's that cancer patients need to do and watch out for. It should be specific to your type of…See More
yesterday
Denise replied to stage4survivor's discussion Still kickin'
"Oops. Not reading my msgs. Sorry! Chris, I just sent a friend request."
Tuesday
Profile Iconpupton, lindab, AlRose and 1 more joined LungLoveLink
Tuesday
AmyLCA replied to Praying4mama's discussion Chylothorax
"Hi there!  I wish I had answers for you. I don't know if a pleurodesis is used in this situation - based on a little bit of reading I did, it is a procedure that is sometimes used along with the thoracic duct ligation (I assume the same as…"
Tuesday
Susan@FreetoBreathe posted events
Tuesday
Denise replied to Caroline's discussion New Member
"Welcome, Caroline!"
Tuesday
Christine32 replied to stage4survivor's discussion Still kickin'
"Glad to see I'm in good company in the harping department.   I won't comment on the sexist implications . . .  (although provoking G can be a great source of amusement).   Please keep us posted on your next…"
Apr 11
MedinaR replied to stage4survivor's discussion Still kickin'
"I passed harping class with flying colors, as did Christine and probably the COB."
Apr 11
John H MOD replied to stage4survivor's discussion Still kickin'
"Hi MR, we were all on that other site at one time. The original site was run by the same group who is running this site now. They are the Lung Cancer Alliance. The only group who advocates for us survivors of lung cancer. We all have a lot of the…"
Apr 10
stage4survivor replied to stage4survivor's discussion Still kickin'
"MR, "Wait 6 months"? Ugh, that's a very provocative question! If you're referring to brain MRIs post-G/K, this is what was done for me and what I would insist on. Triple dose MRI 6weeks, 3 mos & 6 months post-G/K then,…"
Apr 10
designeremily is now a member of LungLoveLink
Apr 10
MedinaR replied to stage4survivor's discussion Still kickin'
"Seem a bunch of us have benefitted as a result of G's survival guilt. Look how long he's hung around these sites helping the next person in this predicament! This convo on this site seems much more free and easy than another one I…"
Apr 10
 
 
 

Blog Posts

How do you decide place of treatment?

Posted by firstladygonzo on January 16, 2014 at 4:01pm — 5 Comments

Wow what to do

Posted by Carolyn on January 3, 2014 at 7:40pm — 8 Comments

New members

Posted by AmyLCA on January 2, 2014 at 10:04am — 2 Comments

An Interesting Journey...

Posted by stage4survivor on December 11, 2013 at 3:30pm — 5 Comments

Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing patient support and advocacy for people living with or at risk for the disease.

If you have questions or need assistance with LungLoveLink, please email lunglovelink@ lungcanceralliance.org or call 1-800-298-2436

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