LungLoveLink

Linking you to resources and support in the lung cancer community!

LungLoveLink, an online community linking you to resources and support in the lung cancer community, is sponsored by Lung Cancer Alliance.

Members

Forum

Introduce Yourself!

Welcome! Please tell us who you are and why you are here.

103 discussions

Non-Small Cell Lung Cancer

For anything related to non-small cell lung cancer.

291 discussions

Small Cell Lung Cancer

For anything related to small cell lung cancer.

32 discussions

Caregiver Corner

For caregivers to share the ups and downs.

75 discussions

CAM/Nutrition

For info about Complementary and Alternative Medicine, and nutrition.

18 discussions

Share the Good News

For when we have a reason to celebrate and want to share it.

40 discussions

Life after Treatment

For those who are figuring out life after cancer.

44 discussions

General Lung Cancer

For those discussions that don't fit neatly into another category.

77 discussions

Memory Wall

For those we've lost. Please tell us about them.

29 discussions

Website Feedback/Technical Support

For when things don't work or we have questions about how they do.

7 discussions

 

Latest Activity

sharon is now a member of LungLoveLink
yesterday
Welcome Them!
Susan@Freeto Breathe updated an event
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Free to Breathe Omaha 5K Run/Walk & Memorial Walk at Miller's Landing

October 19, 2013 from 9:15am to 11:30am
Help us double lung cancer survival!  By participating and choosing to fundraise, you’re  helping us raise awareness and fund vital research programs dedicated to doubling lung cancer survival by 2022.See More
Friday
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Susan@Freeto Breathe posted an event
Thumbnail

Free to Breathe 5K Run/Walk & Memorial Walk at Miller's Landing

October 19, 2013 from 9:15am to 11:30am
Help us double lung cancer survival!  By participating and choosing to fundraise, you’re  helping us raise awareness and fund vital research programs dedicated to doubling lung cancer survival by 2022.See More
Jun 13
0 Comments
Profile Iconbewitched53 and Spring2013 joined LungLoveLink
Jun 10
Kiki. replied to TrixieW's discussion Paralyzed Vocal Cord
"Thank you Trixie.  Hope your doing well. Hugs, Kiki"
Jun 7
Kiki. replied to Kiki.'s discussion Scared To Go Home
"Hi Bronie, Thanks for the reply.  On the meditation, I do sometimes do it but when I'm overwhelmed, I seem to totally forget it.  Funny, that's when I need it the most.  I was on Abilify once...many years ago and something…"
Jun 7
bronie2MOD replied to Kiki.'s discussion Scared To Go Home
"HI there Kiki.  Sometimes w/chemo, white and red blood cells are challenged and transfusions are a necessary and temporary intervention.  In re to the atypical psych meds I was referring to: wondered if your prescriber has thought avout…"
Jun 7
Kiki. replied to John H MOD's discussion Chemo and long term effects
"I was just told today that for the second time, I need a blood transfusion.  When will it all end?  Every time I get over 1 hurdle, another one comes along.  I've been experiencing serious memory loss &…"
Jun 7
Kiki. replied to Kiki.'s discussion Scared To Go Home
"Hi everybody.  Good to hear from you John & Brobie. Got some bad news today.  I have to have a blood transfusion.  The chemo made me anemic.  This is the 2nd time in 1 month.  I'm worried if this is going to be a…"
Jun 7
GADawg/MOD replied to dcj2307's discussion Mom diagnosed with NSCLC Aug 2012
"Hi dcj, I'm sorry to hear about your mom, but you seem to have a positive attitude, which is great! My mom was diagnosed with Stage IV NSCLC at a routine dr's appt in late 2005. They gave her 2-5 years. This fall will be 8 years. Although…"
Jun 6
TrixieW replied to TrixieW's discussion Paralyzed Vocal Cord
"My problem was a paralyzed vocal cord.  You need to see a throat specialist to find out what is causing your hoarseness and what the best treatment might be.  Good luck!   Enid"
Jun 6
bronie2MOD replied to Kiki.'s discussion Scared To Go Home
"Back again Kiki..if the anxiety remains to be an issue for you, ask your prescriber about the so called atypical psychiatric medications that deal with a couple of issues at the same time, including anxiety..for whatever its worth, can't hurt…"
Jun 5
Kiki. replied to TrixieW's discussion Paralyzed Vocal Cord
"So glad I found this discussion.  My surgery was back in Feb. and I just finished chemo & radiation.  My real voice and dealing w/ hoarseness is very bothersome.  I had  a tube down my throat when I went into respiratory…"
Jun 4
Kiki. replied to Bj 's discussion right or left lung removed
"Message to Maryanne:  You said in another place that:  I am expecting that my left lower lobe has to be removed because of a " nodule" . If its as easy as my right upper love lobectomy I just had.. I'll take my second…"
Jun 4
John H MOD replied to Kiki.'s discussion Scared To Go Home
"Hi Kiki , I just wanted to let you know that I'm a thirteen year survivor of 3A nsclc. Talking to you helps me probably more than you may ever know. I can relate and talk freely here but in person I freeze talking to someone new. Animals are…"
Jun 4
Kiki. replied to Kiki.'s discussion Scared To Go Home
"Thank you All so very much for the replies and suggestions.  Yesterday I did a little shopping and I felt so much better.   Just like how I used to feel when getting the treatments before.  The anxiety medication; which I'm…"
Jun 4
John H MOD replied to John H MOD's discussion The fight after the fight, Huffington Post article
"I saw it on Facebook David. It was posted by National Coalition for Cancer Survivorship yesterday. It's link says Huffington Post.com. I will share the link on my Facebook page too. John Hill on Facebook. It was interesting."
Jun 4
Profile Iconblt, Fighter and miss kittie joined LungLoveLink
Jun 4
Susan@Freeto Breathe posted events
4 more…
Jun 4
DavidatpMOD replied to John H MOD's discussion The fight after the fight, Huffington Post article
"Where is the article John? Am I blind? I can't find it.... Sounds like something I really want to read. All of us who go through the cancer adventure whether we are patients, care givers, family, friends will be changed…"
Jun 4
 
 
 

Blog Posts

Cancer Reappeared

Posted by Rowland on May 18, 2013 at 12:28pm — 9 Comments

Post surgery

Posted by Maryanne on April 26, 2013 at 4:27am — 6 Comments

Need some advice

Posted by KDDHope on April 9, 2013 at 12:21pm — 4 Comments

Avastin

Posted by Tammy Simon on April 7, 2013 at 2:16am — 1 Comment

Looking for people who have been on tarceva over 5 years

Posted by Jeannie on April 5, 2013 at 2:53pm — 7 Comments

Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing patient support and advocacy for people living with or at risk for the disease.

If you have questions or need assistance with LungLoveLink, please email lunglovelink@ lungcanceralliance.org or call 1-800-298-2436

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