"Leanna Hi , you know all the fund raising and stuff you can always do on your own. It's a good escape for you and even maybe for your partner from you. No offense just sometimes we can get so wrapped up with the situation we are in that we…"
Linking you to resources and support in the lung cancer community!
LungLoveLink, an online community linking you to resources and support in the lung cancer community, is sponsored by Lung Cancer Alliance.
Forum
General Lung Cancer
For those discussions that don't fit neatly into another category.
77 discussions
Website Feedback/Technical Support
For when things don't work or we have questions about how they do.
7 discussions
Latest Activity
Sjgraves replied to COcaregiver's discussion Scans are scary (SCLC) how do you get through?"Leanna,
David mentioned that he is taking Xanax to help with his anxiety. I am a caregiver to my husband who was diagnosed 3 weeks ago with stage IV lung cancer. The day after we found out I woke up (well, I didn't really wake up because I…"
Sjgraves replied to Sjgraves's discussion I would like to introduce myself"Thanks for the encouragement!!! we are not giving up hope, both my husband and I are determined to prove them wrong!! Keith and his second chemo treatment today with no adverse side effects so far. He had 9 days of radiation prior to the chemo to…"
GADawg/MOD replied to Sjgraves's discussion I would like to introduce myself"Hi Sjgraves,
I'm sorry to hear about your husband. Statistics are just statistics and don't necessarily apply to individual situations. So don't give up hope! My mom was told 2-5 years at her diagnosis, then a month later they changed…"
GADawg/MOD replied to Merry's discussion celebration time"Congrats, Merry! 5 years is quite a milestone. And lung cancer twice?! You deserve a party!"
John H MOD replied to John H MOD's discussion Chemo and long term effects"I think it's not a problem to give Facebook info. It is yours to give or not. I think you would be better served by doing it in a private message. You never know who might read and open post.
I didn't loose weight when I went through…"
Susan@Freeto Breathe updated an event
Free to Breathe Milwaukee 5K Run & 2-Mile Walk at Veteran's Park
October 12, 2013 from 8:30am to 10:30am
Help us double lung cancer survival! By participating and choosing to fundraise, you’re helping us raise awareness and fund vital research programs dedicated to doubling lung cancer survival by 2022.See More
Susan@Freeto Breathe updated an event
Free to Breathe Lafayette 5K Run/Walk & 1-Mile Walk at River Ranch Town Square
September 28, 2013 from 9:15am to 11:30am
Help us double lung cancer survival! By participating and choosing to fundraise, you’re helping us raise awareness and fund vital research programs dedicated to doubling lung cancer survival by 2022.See More
Sjgraves replied to Sjgraves's discussion I would like to introduce myself"Hi Amy,
He actually started his chimo today, they are giving him one dose of Carboplatin and Etoposide on day one then just Etoposide on day 2 and day 3. Then 3 weeks off then round 2. She stays 4 to 6 rounds. Then the question, do you want to know…"
AmyLCA replied to Sjgraves's discussion I would like to introduce myself"Hi sjgraves,
Cancer can be a truly overwhelming experience for both patients as well as caregivers. Has he started treatment? Can you tell us a little bit about what his treatments are or what else you know about his lung cancer?
Amy"
AmyLCA commented on Rowland's blog post Cancer Reappeared"Hi Rowland,
Carbo/Taxol/Avastin is a pretty standard combination of drugs, so hopefully others will chime in. I think Taxol is more associated with peripheral neuropathy than Alimta, so if you start to feel any tingling in your hands or feet, talk…"
AmyLCA replied to Greensmythe's discussion The Story of My Blog- Cancer: Dammitt!"Hi Kiki,
I am sorry that you have had such a difficult time with your cancer. May I suggest that you post this as a new post, as opposed to a reply to Greensmythe's? That way more people might see it. If you need help…"
Kiki. replied to ElaineK's discussion Things my doctor didn't tell me..."I feel like you do. I'd rather know what I'm facing and have time to deal w/ it and accept it on my own terms/time. That's just so wrong of the doc's. I felt I had to do the reserch myself..for the most…"
Kiki. replied to ElaineK's discussion Things my doctor didn't tell me..."Hi Merry,
I can hardly believe that you can have cancer twice.??? How nia've I am. I haven't done much studying on cancer because maybe I don't really want to know..or at least..I didn't then. Now, I do. Tell me…"
Kiki. replied to John H MOD's discussion Chemo and long term effects"Thanks! I didn't know chemo had long term effects. I don't know much at all about the whole cancer thing other than I'm going through the treatments. Surgery, chemo, & radiation. I feel ignorant to this…"
Merry posted a discussioncelebration time
Yesterday marked my 5th anniversary from my second lung cancer!!!! I remember like it was yesterday when the nurse came in to take my vitals before sending me to the OR. I was thinking, shit, I have to go through this all over again?But I did and…See More
Merry replied to ElaineK's discussion Things my doctor didn't tell me..."Hi Kiki- I didn't have pain following surgery either. I've had lung cancer twice, 10 years apart. The worse pain that I did have was muscle cramping on my right side 16 years ago for the first. My left side was more extensive but no pain…"
Kiki. commented on Rowland's blog post Cancer Reappeared"I had a lobectomy...left lung lower lube removed. Shortness of breath and exhausted from just a little bit of walking was about it. I'm almost finished w/ Chemo and will finish Radiation in 1 week. I don't know what kind…"
Kiki. replied to ElaineK's discussion Things my doctor didn't tell me..."I never experienced surgery induced pain . I had a lobectomy...left lung lower lube removed. Shortness of breath and exhausted from just a little bit of walking was about it. I'm almost finished w/ Chemo and will finish…"
Blog Posts
Cancer Reappeared
Posted by Rowland on May 18, 2013 at 12:28pm — 3 Comments
Post surgery
Posted by Maryanne on April 26, 2013 at 4:27am — 6 Comments
Need some advice
Posted by KDDHope on April 9, 2013 at 12:21pm — 4 Comments
Avastin
Posted by Tammy Simon on April 7, 2013 at 2:16am — 1 Comment
Looking for people who have been on tarceva over 5 years
Posted by Jeannie on April 5, 2013 at 2:53pm — 7 Comments
Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing patient support and advocacy for people living with or at risk for the disease.
If you have questions or need assistance with LungLoveLink, please email lunglovelink@ lungcanceralliance.org or call 1-800-298-2436
If you have questions or need assistance with LungLoveLink, please email lunglovelink@ lungcanceralliance.org or call 1-800-298-2436
Events
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Free to Breathe Pittsburgh 5K Walk & 1-Mile Walk
June 16, 2013 from 8:45am to 11:45am – North Park Boathouse
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Free to Breathe Raleigh Great 108 Yogathon
June 22, 2013 from 2:30pm to 5pm – Burn Athletic
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Free to Breathe Delmarva 5K Run/Walk & 1-Mile Walk
August 11, 2013 from 7:45am to 11am – Cape Henlopen High School
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Free to Breathe San Diego 5K Run/Walk
August 17, 2013 from 8:30am to 10am – Liberty Station NTC Park
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Free to Breathe Harrisburg 5K Run/Walk & 1-Mile Walk
August 24, 2013 from 9am to 10:30am – Carousel Pavillion
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Free to Breathe Tacoma 5K Run/Walk & 1-Mile Walk
September 7, 2013 from 9am to 10:30am – Dickman Mill Park
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Free to Breathe Glastonbury 5K Run/Walk
September 15, 2013 from 9:30am to 11:30am – Glastonbury High School
© 2013 Created by AmyLCA.
