LungLoveLink

Linking you to resources and support in the lung cancer community!

LungLoveLink, an online community linking you to resources and support in the lung cancer community, is sponsored by Lung Cancer Alliance.

Members

Forum

Introduce Yourself!

Welcome! Please tell us who you are and why you are here.

140 discussions

Non-Small Cell Lung Cancer

For anything related to non-small cell lung cancer.

319 discussions

Small Cell Lung Cancer

For anything related to small cell lung cancer.

37 discussions

Caregiver Corner

For caregivers to share the ups and downs.

77 discussions

CAM/Nutrition

For info about Complementary and Alternative Medicine, and nutrition.

19 discussions

Share the Good News

For when we have a reason to celebrate and want to share it.

44 discussions

Life after Treatment

For those who are figuring out life after cancer.

51 discussions

General Lung Cancer

For those discussions that don't fit neatly into another category.

84 discussions

Memory Wall

For those we've lost. Please tell us about them.

30 discussions

Website Feedback/Technical Support

For when things don't work or we have questions about how they do.

8 discussions

 

Latest Activity

Rowland replied to Rowland's discussion Tarceva
"My phone number is 352 753-9480 Thank you. Rowland"
Dec 15
TaraLCA - MOD replied to Rowland's discussion Tarceva
"Hi Rowland, If you are interested in connecting with someone over the phone who has been on Tarceva, we'd be happy to connect you through our Phone Buddy Program. If you're interested, message me your phone number and I'll give you a…"
Dec 15
Debra is now a member of LungLoveLink
Dec 15
Denise replied to Nilsa Gordon barclay's discussion Left lung cancer in stage 1b
"The only thing that I've found that works for me to cope with scanxiety is keeping busy. Not much help that. Let us know how you do."
Dec 13
Rowland posted a discussion

Tarceva

I have been getting cat scan's every four months for three years. Lung cancer was detected three years ago and after removing the left upper lobe and a wedge on the left lower, Chemo and Radiation it seemed to be fine. About a year latter it…See More
Dec 12
Profile Iconreedgibs and C joined LungLoveLink
Dec 12
Nilsa Gordon barclay replied to Nilsa Gordon barclay's discussion Left lung cancer in stage 1b
"Good morning Denise, how are you? Thanks for checking on me I'm due for my ct this month I'm trying not to think about it but I'm still the same way, difficult bending lots of discomfort when it rains and the shortness of breath but…"
Dec 12
stage4survivor replied to stage4survivor's discussion Fifteen years today...
"Denise, et all, Ah yes, how great I am... Mrs. G would suggest I go "inspire" the dog poop while I'm picking it up! In the deepest, most hidden part of me, no matter how feeble the attempts to contribute, I'm compelled to do…"
Dec 12
Denise replied to Nilsa Gordon barclay's discussion Left lung cancer in stage 1b
"So glad that you and Tara connected. I'm checking to see how you're doing."
Dec 12
Denise replied to stage4survivor's discussion Fifteen years today...
"G- you still Inspire. Thank you so much for your contribution to that amazing bit of research, writing and support gathering you contributed to the new NCCN Guidelines for oligometastatic disease. It signifies a new era in the patient-clinician…"
Dec 12
Karen is now a member of LungLoveLink
Dec 8
Profile Iconpamb and cancerhater joined LungLoveLink
Dec 2
Caden replied to stage4survivor's discussion Fifteen years today...
"15!!   Glad you are still here~ Mrs. G. must have the patience of a saint!   I miss you on that other site.   It's good to see you are still sharing your story somewhere in cyberspace.  :)   Cathy"
Dec 1
Erin replied to stage4survivor's discussion Fifteen years today...
"Wow!  You are an inspiration to us all!  Here's hoping that you will be making a similar post in fourteen more years!!!   Erin"
Dec 1
stage4survivor posted a discussion

Fifteen years today...

11/30/99 I sat dazed staring at the viewbox of the MRI revealing the egg-sized tumor smack in the middle of my brain. The beginning of my stage 4 NSCLC journey.It's still mystifying that I should have been granted this amazing gift and remained…See More
Nov 30
Nilsa Gordon barclay replied to Nilsa Gordon barclay's discussion Left lung cancer in stage 1b
"Hi Denise, I went to the web you sent me and Tara responded and she supposed to get me in contact with someone with my condition, I'll keep in touch with you thanks again"
Nov 24
Nilsa Gordon barclay replied to Nilsa Gordon barclay's discussion Left lung cancer in stage 1b
"Hi tara my cell number is 917-214-4400, thanks"
Nov 24
TaraLCA - MOD posted a blog post

Patients & Caregivers Needed to Participate in Survey to Improve Patient Outcomes

Hi All,We are working with the Catalent Applied Drug Delivery Institute to gather patient and caregiver insights in order to better understand the unmet needs of patients when managing lung cancer, as well as the overall impact of treatment and on…See More
Nov 24
TaraLCA - MOD replied to Nilsa Gordon barclay's discussion Left lung cancer in stage 1b
"Hi Nilsa, I am sorry to hear that you are going through such a difficult recovery. We have a one-to-one peer telephone support program called the Phone Buddy Program and we'd be happy to connect you with someone who had the same type of…"
Nov 24
Profile Iconcarolfarley18 and lokalemom joined LungLoveLink
Nov 24
 
 
 

Blog Posts

Turned upside down

Posted by Flong on October 29, 2014 at 1:13pm

How do you decide place of treatment?

Posted by firstladygonzo on January 16, 2014 at 4:01pm — 5 Comments

Wow what to do

Posted by Carolyn on January 3, 2014 at 7:40pm — 8 Comments

Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing patient support and advocacy for people living with or at risk for the disease.

If you have questions or need assistance with LungLoveLink, please email lunglovelink@ lungcanceralliance.org or call 1-800-298-2436

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