LungLoveLink

Linking you to resources and support in the lung cancer community!

LungLoveLink, an online community linking you to resources and support in the lung cancer community, is sponsored by Lung Cancer Alliance.

Members

Forum

Introduce Yourself!

Welcome! Please tell us who you are and why you are here.

62 discussions

Non-Small Cell Lung Cancer

For anything related to non-small cell lung cancer.

244 discussions

Small Cell Lung Cancer

For anything related to small cell lung cancer.

23 discussions

Caregiver Corner

For caregivers to share the ups and downs.

73 discussions

CAM/Nutrition

For info about Complementary and Alternative Medicine, and nutrition.

18 discussions

Share the Good News

For when we have a reason to celebrate and want to share it.

34 discussions

Life after Treatment

For those who are figuring out life after cancer.

37 discussions

General Lung Cancer

For those discussions that don't fit neatly into another category.

68 discussions

Memory Wall

For those we've lost. Please tell us about them.

26 discussions

Website Feedback/Technical Support

For when things don't work or we have questions about how they do.

7 discussions

Blog Posts

new here

Posted by starfish on May 29, 2012 at 8:00pm — 1 Comment

Remission and Depression

Posted by marilyn on May 21, 2012 at 2:00am — 4 Comments

Good CT Scan....

Posted by jojoaunt on May 20, 2012 at 9:03pm

 

Latest Activity

DavidatpMOD commented on starfish's blog post new here
"Hi Joayn and welcome to Lunglovelink. I don't have any personal Tarceva success stories but have heard many successes with the EGFR mutation.  You are in good company here and I wish you the best of luck and reach N.E.D.(No Evidence…"
yesterday
Maribeth Wall replied to Maribeth Wall's discussion M.S. and NSLC stage IV
"Amen to that John!  and thank you for the prayers.  Right back at you with tons of prayers!   Maribeth "
yesterday
starfish posted a blog post

new here

Hi,I was recently dignosed with stage 4 NSCLC and hope to find a community of fellow travelers here. I am 64 next month and live alone in a rural but very beautiful setting. I have been on an herbal and dietary protocol since april and taking low…See More
yesterday
sbarnes1963 replied to sbarnes1963's discussion This is for you...
"Mission accomplished!  I ran the 1/2 marathon (13.1 miles) and it took me 2 hours & 28 minutes but I made it :)  My daughter wrote on the back of my shirt "In Loving Memory of My Sister Linda, battle lost 3-7-12".  As I…"
yesterday
sbarnes1963 replied to John H MOD's discussion A new battle - COPD
"We'll keep the prayers going that it is nothing major.  Glad you are feeling better.  Try to keep those fan blades clean!  "
yesterday
Profile Iconstarfish, jollydowsen and Kathy joined LungLoveLink
yesterday
John H MOD replied to birdlady053's discussion Getting results from pet scan tomorrow
"Hi Victoria , I was just diagnosed with COPD andim also a 3A NSCLC. I think id go with infection unless and until you have proof positive of what it is. I would also be looking and thinking of a second opinion. I mean if they can't tell you 100…"
Monday
GADawg/MOD replied to Toad's discussion New to this forum.
"Todd, what Maribeth said is right on the money. You are just getting started on this ride, so don't throw in the towel yet. My mom is a 6 1/2 year stage IV survivor. Hang in there! "
Sunday
Maribeth Wall replied to Toad's discussion New to this forum.
"Hi Todd - Sorry to hear about your latest set back.  I am a five year stage 4 nslc survivor and I can't tell you how many times you are going along all fine and dandy and then the stupid cancer wants to remind me it is still there.…"
Sunday
Toad replied to Toad's discussion New to this forum.
"Hi Holly. My local oncologist was ready to start me off with carbo/taxol but my 2nd opinion doctors at Ma General changed it to cisplatin etc. I guess they felt that was my best chance for a cure. I have a close friend who had a horrible time with…"
Sunday
Toad replied to Toad's discussion New to this forum.
"John, the waiting has definately been the worst part of this whole experience. For the most part I am happy with my doctors but I am amazed at how busy the cancer centers are, at how many others have this disease. I am encoutaged by survivors like…"
Sunday
HollyJo/MOD replied to Toad's discussion New to this forum.
"Todd, My husband had a recurrence after no activity, almost a year later. He had a Brain Met. He underwent Cyber Knife Surgery for that, and 6 months later they found another Brain Met. He had Cyber Knife Surgery again...that was in November 2010.…"
Saturday
John H MOD replied to Toad's discussion New to this forum.
"Hi Todd, I am a twelve year 3A NSCLC . Please believe me you are still in the game. The waiting is always brutal. I try to live today for today. You can't change what has already happened NPR what's to be. Keep pushing the docs for…"
Saturday
John H MOD replied to Maribeth Wall's discussion M.S. and NSLC stage IV
"Maribeth, as you know , you have a great attitude. I have always said it is better to laugh than cry. I just can't get around the situation you have. I use the serenity prayer a lot in my life. You can only change some things in your life. The…"
Saturday
Toad replied to Toad's discussion New to this forum.
"Thank you guys for your comments. Unfortunately the biopsy results were positive. Both the original mass and the suspicious node. I had been doing so well, and feeling good. I thought maybe I had licked this thing but I guess not. In fact far from…"
Saturday
Maribeth Wall replied to Maribeth Wall's discussion M.S. and NSLC stage IV
"Thanks John - I had my crying jags last weekend and earlier this week.   I am still in disbelief over it all.  Having one serious illness but to add a second one seems hard to imagine.  I meet with the neurologist this past…"
Saturday
John H MOD replied to Maribeth Wall's discussion M.S. and NSLC stage IV
"Oh I'm so sorry Maribeth. Congrats on the 5 yr anniversary ! I can only sympathize with you on the MS. li In for a penny , in for a pound I guess. You know you survived cancer so now you are fair game for any other life threatening disease that…"
Friday
Maribeth Wall replied to John H MOD's discussion A new battle - COPD
"That is good news to hear John.  It is amazing how 30 days can seem like a lifetime away but praying the scar tissue is just scar tissue and everything will be cleared up by end of June.  Maribeth"
May 24
klnst3 posted a discussion

Navelbine...

Has anyone here ever had any experiences with Navelbine and Stage IIIB/Stage IV lung cancer with mets to the adrenal gland? Possibly with radiation coinciding? (The focus is on the tumor on the adrenal gland and getting it to shrink after no results…See More
May 24
John H MOD replied to John H MOD's discussion A new battle - COPD
"I found out my results. Good I think. The doctor said it looks like scar tissue from this bout of pneumonia. But isn't there always a but, he says that there was an infiltrate that there not sure of ( what ever an infiltrate is?) and they think…"
May 23
 
 
 

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