LungLoveLink

Linking you to resources and support in the lung cancer community!

LungLoveLink, an online community linking you to resources and support in the lung cancer community, is sponsored by Lung Cancer Alliance.

Members

Forum

Introduce Yourself!

Welcome! Please tell us who you are and why you are here.

130 discussions

Non-Small Cell Lung Cancer

For anything related to non-small cell lung cancer.

312 discussions

Small Cell Lung Cancer

For anything related to small cell lung cancer.

37 discussions

Caregiver Corner

For caregivers to share the ups and downs.

77 discussions

CAM/Nutrition

For info about Complementary and Alternative Medicine, and nutrition.

19 discussions

Share the Good News

For when we have a reason to celebrate and want to share it.

43 discussions

Life after Treatment

For those who are figuring out life after cancer.

50 discussions

General Lung Cancer

For those discussions that don't fit neatly into another category.

84 discussions

Memory Wall

For those we've lost. Please tell us about them.

30 discussions

Website Feedback/Technical Support

For when things don't work or we have questions about how they do.

7 discussions

 

Latest Activity

Denise replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"John, I strongly agree with your statement that its up to us to help the next survivor. I still have issues related to treatment: neuropathy, tinnitus, breaking bones, pleural and pericardial effusions, fatigue. Occasionally, I get that fear that a…"
43 minutes ago
Denise replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"There is a program offered at Cancer Support Community (formerly Wellness Community), Gilda's Clubs and some hospitals called Cancer Transtions. It cover all phases of survivorship including financial, nutritional, exercise, general health and…"
51 minutes ago
ChelleG replied to John H MOD's discussion Did anyone receive a survival plan for life after cancer?
"Hi John, I am still in the what's next phase. I am a year out and have acute anxiety. I am in therapy, a yoga class and seeking a support group. There are support groups for people in treatment but I haven't found one for survivors…"
4 hours ago
John H MOD posted a discussion

Did anyone receive a survival plan for life after cancer?

I know I've read a little bit about the plan for survivors that we should get when your treatments are over. It is suppose to contain the do' s and dont's that cancer patients need to do and watch out for. It should be specific to your type of…See More
13 hours ago
Denise replied to stage4survivor's discussion Still kickin'
"Oops. Not reading my msgs. Sorry! Chris, I just sent a friend request."
yesterday
Profile Iconpupton, lindab, AlRose and 1 more joined LungLoveLink
yesterday
AmyLCA replied to Praying4mama's discussion Chylothorax
"Hi there!  I wish I had answers for you. I don't know if a pleurodesis is used in this situation - based on a little bit of reading I did, it is a procedure that is sometimes used along with the thoracic duct ligation (I assume the same as…"
Tuesday
Susan@FreetoBreathe posted events
Tuesday
Denise replied to Caroline's discussion New Member
"Welcome, Caroline!"
Tuesday
Christine32 replied to stage4survivor's discussion Still kickin'
"Glad to see I'm in good company in the harping department.   I won't comment on the sexist implications . . .  (although provoking G can be a great source of amusement).   Please keep us posted on your next…"
Friday
MedinaR replied to stage4survivor's discussion Still kickin'
"I passed harping class with flying colors, as did Christine and probably the COB."
Apr 11
John H MOD replied to stage4survivor's discussion Still kickin'
"Hi MR, we were all on that other site at one time. The original site was run by the same group who is running this site now. They are the Lung Cancer Alliance. The only group who advocates for us survivors of lung cancer. We all have a lot of the…"
Apr 10
stage4survivor replied to stage4survivor's discussion Still kickin'
"MR, "Wait 6 months"? Ugh, that's a very provocative question! If you're referring to brain MRIs post-G/K, this is what was done for me and what I would insist on. Triple dose MRI 6weeks, 3 mos & 6 months post-G/K then,…"
Apr 10
designeremily is now a member of LungLoveLink
Apr 10
MedinaR replied to stage4survivor's discussion Still kickin'
"Seem a bunch of us have benefitted as a result of G's survival guilt. Look how long he's hung around these sites helping the next person in this predicament! This convo on this site seems much more free and easy than another one I…"
Apr 10
stage4survivor replied to stage4survivor's discussion Still kickin'
"Coward! G"
Apr 9
John H MOD replied to stage4survivor's discussion Still kickin'
"I'm not commenting on wife school. I know what side of my bread gets buttered on. I have to enjoy my remaining years and I dont want to spend them learning how to cook, clean, and or anything else my wife does for me.  Ok back to work…"
Apr 9
Christine32 replied to stage4survivor's discussion Still kickin'
"MendinaR:   Hi!!!!  So good to see you here, but so sad to hear of your brain mets - you are certainly talking to the right guy (G).  Just wanted to give you a big WELCOME! Hugs, Chris"
Apr 9
stage4survivor replied to stage4survivor's discussion Still kickin'
"MR, I did feel a little "mocus" shortly after the craniotomy but, I was convinced that was due to dilantin & dexamethasone. It cleared after D/C'ing the dilantin and tapering off the dex or perhaps the recovery was coincident. In…"
Apr 9
MedinaR replied to stage4survivor's discussion Still kickin'
"I guess recovery would be easy with lots of pain meds! Lol. My brain doesn't really interpret sensations as pain, usually, so I don't take any pain meds very often. It's really more of a lethargy. It could also be because it's…"
Apr 9
 
 
 

Blog Posts

How do you decide place of treatment?

Posted by firstladygonzo on January 16, 2014 at 4:01pm — 5 Comments

Wow what to do

Posted by Carolyn on January 3, 2014 at 7:40pm — 8 Comments

New members

Posted by AmyLCA on January 2, 2014 at 10:04am — 2 Comments

An Interesting Journey...

Posted by stage4survivor on December 11, 2013 at 3:30pm — 5 Comments

My Story-

Posted by Denise on December 9, 2013 at 7:49pm — 5 Comments

Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing patient support and advocacy for people living with or at risk for the disease.

If you have questions or need assistance with LungLoveLink, please email lunglovelink@ lungcanceralliance.org or call 1-800-298-2436

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