LungLoveLink

Linking you to resources and support in the lung cancer community!

LungLoveLink, an online community linking you to resources and support in the lung cancer community, is sponsored by Lung Cancer Alliance.

Members

  • Dee starr
  • Felicia
  • janewi46
  • amcginnis
  • joyceann
  • KristyJo
  • Joanai
  • Nancy

Forum

Introduce Yourself!

Welcome! Please tell us who you are and why you are here.

48 discussions

Non-Small Cell Lung Cancer

For anything related to non-small cell lung cancer.

220 discussions

Small Cell Lung Cancer

For anything related to small cell lung cancer.

21 discussions

Caregiver Corner

For caregivers to share the ups and downs.

70 discussions

CAM/Nutrition

For info about Complementary and Alternative Medicine, and nutrition.

17 discussions

Share the Good News

For when we have a reason to celebrate and want to share it.

26 discussions

Life after Treatment

For those who are figuring out life after cancer.

31 discussions

General Lung Cancer

For those discussions that don't fit neatly into another category.

61 discussions

Memory Wall

For those we've lost. Please tell us about them.

26 discussions

Website Feedback/Technical Support

For when things don't work or we have questions about how they do.

7 discussions

Blog Posts

Nancy

to answer your question

Posted by Nancy on January 26, 2012 at 9:50pm

Nancy

starting chemo

Posted by Nancy on January 22, 2012 at 2:32pm — 5 Comments

Deva

Facial Swelling

Posted by Deva on January 22, 2012 at 11:41am — 1 Comment

 

Latest Activity

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Deva replied to Deva's discussion 'Chemo with stage I yea or nay ??'
Well Amy this is my 3rd attempt to reply.  First and foremost thank you for this sight and your dedication to it/us!  I do not have the mutation.  Started 2 weeks radiation July 2011, followed by Carbo (which they stopped 3 weeks ago)…
yesterday
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GADawg/MOD replied to Picaso's discussion 'Grasping at straws'
Hi Picaso, My mom was diagnosed with stage IV LC 6 years ago. My father and I are her caregivers. It's definitely an adjustment, being a caregiver. I basically put my life on hold and devoted myself entirely to my mom's care- doctor's…
yesterday
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AmyLCA replied to Deva's discussion 'Chemo with stage I yea or nay ??'
Hi Deva, It's so hard when this kind of thing happens because it leaves everyone wondering "what if?" My mom, too, had a lobectomy and was told no chemo was necessary. It was 1995 so quite some time ago. In any event, a year and a…
Friday
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Diana48 replied to Hopefull2012's discussion 'New to me'
Danielle,   The final decision about chemo will be up to your mother but I know where she is coming from.  I saw my mother go through treatments and I lost her at age 66, I saw my brother go through treatments and lost him at age 59…
Friday
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Deva replied to jc123's discussion 'New Study'
Would love to be updated on when it is going to air.  I myself had Stage 1A NSCLC November 2007.  Right lower lobe removal and follow-up for 3 years.  Recovered well and was told chances of cancer returning were very slim.  I was…
Friday
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Chemo with stage I yea or nay ??

I would really like to hear from "the group" on this one.  November 2007 diagnosed with stage IA NSCLC. Right lower lobe removed. Great recovery. Several times reassured I needed no further therapy ( meaning chemo or radiation). Go about my life,…See More
Discussion posted by Deva Friday
2 Comments
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to answer your question

my husband 1st had a brain tumor which was an adenocarsinoma with characteristic of spread from lung, but no primary was found. After surgery they radiated the spot. then another brain tumor showed up and that was successfully radiated. Finally in…See More
Blog post by Nancy Friday
0 Comments
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AmyLCA replied to KDDHope's discussion 'Low oxygen level high heart rate'
Hey KDD, I have heard about low oxygen and high heart rate for radiation pneumonitis, but I don't know much about it. With all of his other health issues (COPD, diabetes, high blood pressure) it could be drug interactions, it could be related…
Thursday
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AmyLCA replied to littlelady4220's discussion 'PET Scan Equivalent?'
Hi littlelady, Is the tumor in his liver the only one present? Might be worth asking his doctor about a procedure called Radiofrequency Ablation, or RFA. It is sometimes used to kill liver tumors.  Has your husband considered…
Thursday
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AmyLCA replied to jc123's discussion 'New Study'
Definitely let us know when the story airs!  I wanted to forward you this link from a previous conversation about bras and pain: http://www.lunglovelink.org/forum/topics/bra-dilemaany-help? Maybe you will…
Thursday
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Felicia and Dee starr joined LungLoveLink Thursday
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littlelady4220 replied to littlelady4220's discussion 'PET Scan Equivalent?'
  Now that my husband has had his PET Scan, here are the results - and some questions - again!   A brief history - he was dx 1/11 with SCLC-Extensive, went through six rounds of carbo/etop, had a PET Scan 6/11 and it showed of the six…
Thursday
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AmyLCA replied to jc123's discussion 'Depression'
Carolyn, I just emailed you through LungLoveLink. If you have questions for me, you can email me back through your email. Or click on my profile and you will see the option to send me an email.  You can also call us at 1-800-298-2436. Amy
Thursday
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KDDHope commented on Nancy's blog post 'starting chemo'
Hi Nancy, my dad has stage 3B NSCLC.  I was the crazy one disinfecting the house, bought the shelf out of hand sanitizer and had it laid out across the house, and the cars.  My dad seems to be very much like your husband.  I can tell…
Thursday
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KDDHope replied to Hopefull2012's discussion 'stage IV NSCLC Squamous Cell'
Hi, my dad has stage 3B NSCLC, and the best advice I can offer to you is to continue to do what you are doing.  There were days my dad was very grumpy and would give me a hard time about taking medicine or eating or just getting up.  I…
Thursday
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Low oxygen level high heart rate

Hi everyone, I hope everyone is doing well.  As many of you know my dad has stage 3B lung cancer.  He finished treatment in September and we got positive results in December that the cancer for now is gone.  He has been on a regimen of steroids for…See More
Discussion posted by KDDHope Thursday
1 Comment
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Carolyn replied to jc123's discussion 'Depression'
Hi honey how are you doing??  I have been thinking of you and thinking of you and I did not know how to get ahold of you.  In fact I am trying to get ahold of Amy alsso to ask her some questions and don't know how to do that…
Wednesday
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jc123 replied to jc123's discussion 'Depression'
Carolyn how are you doing?  Not sure if you are back from your vacation yet.  If you have news yet let me know......Thinking of you
Wednesday
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New Study

I was contacted by my oncologist at MD Anderson this morning asking me if I would be willing to speak to an ABC reporter concerning a news  break of a posible new procedure to be able to do genetic testing to find out if a patient would benefit from…See More
Discussion posted by jc123 Wednesday
2 Comments
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Hopefull2012 replied to Hopefull2012's discussion 'stage IV NSCLC Squamous Cell'
I took your advice and talked to her about taking the anxiety medication she has on a daily basis to see if that and the nausea meds he gave her will help. I have to tell you I feel like the food and pill pusher, sometimes she gets grumpy with me,…
Wednesday
 
 
 

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If you have questions or need assistance with LungLoveLink, please email lunglovelink@ lungcanceralliance.org or call 1-800-298-2436

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