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large cell neurendocrine carcinoma is treated like sm cell started by Debkd
Hi new to site, My husband was diagnosed with large cell nueroendocrine carcinoma. A rare lung cancer. It has characteristics of sm cell so they treat it with those drugs. He has undergone 6 rounds of carboplatin and etoposide. Cancer in lymphs and small area of brain. Most of the tumors have shrunk but one is getting bigger. Maybe radiation. This cancer can create blood clots and he has 2 on his lung. Taking Fragmin injections. He was diagnosed in April of this year (2011), . Does any one else have this cancer? Can you give me some advice. Its stage 4.
He is still going to work 4 days a week and has a great outlook, but he gets very tired. I'm so worried about him. He just turned a young 69 yrs. He's the love of my life. God bless all. debk
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Permalink Reply by GADawg/MOD on -
Hi there, my mom was diagnosed at 59 with stage IV large cell carcinoma 6 years ago. She was on carboplatin and taxol. Since my mom's cancer isn't the same as yours, I can't really speak to your exact experience and the different drugs your husband is on, but you will definitely find support on this site. I read in your other post that you're going to Dana Farber- you can't go wrong there! Let us know how the appt. goes and we can give more advice. Good luck!
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Permalink Reply by Debk on -
Thanks for replying, youre the only one so far. How is your mom? At appt on Nov 17th at Dana farer they found two oof the tumors were larger. Going to do another ct and mri on Dec 15 to see how things are. May start a new chemo or could wait til after Christmas. LC N E cancer acts a lot like small cell so they treat it with this types of drugs. Going to do genetic testing on tumor to see if they can identify it more clearly and treat it better. Why they didn" do that before I don' know. He hasn't had chemo for 2 months but is still tired and gets nausea from time to time. Any advice God Bless
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Permalink Reply by GADawg/MOD on
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Hi there! That's wonderful that you're doing genetic testing- that's so important nowadays in treating LC. Chemo stays in your system for a while, so it's normal to still be tired. One thing I've learned with cancer is that it's a lot of "watch and wait"- i.e. the CT and MRI on Dec. 15. There always seems to be another scan, another test. My mom is doing ok- we're doing another MRI in 4 weeks to see the status of her brain tumor. I hope you've had a nice Thanksgiving- hang in there!
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Permalink Reply by Debk on
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hi !! Thank you so much for replying, So glad your mom is doing ok. Hope the MRI comes back with encouraging results.
My husband was diagnosed in April of this year so it hasn't been that long, yet it seems forever. Yes watch and wait. It's all very hard. He has a great attitude! I'm the one who's jumpy to say the least. We did have a good Thanksgiving. Desert with my our oldest son's family, the three grandsons are always fun! Hope yours was a very nice one. Thanks for replying. God bless
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