FAQs

What do the support forum categories mean?

Non-small cell

This forum is for people with questions about non-small cell lung cancer. It’s as simple as that!

 

Small cell

This forum is for people who have questions about small cell lung cancer. It’s also as simple as that!

Caregiver Corner

Sometimes caregivers need to talk about things that only a caregiver can understand. This is a safe place for that. Caregivers who are sad, scared, or frustrated can feel free to post here without judgment.

 

CAM/Nutrition

Often survivors and caregivers hear about special diets, supplements, or therapies like reiki or acupuncture that they are curious to learn more about. Here’s where those questions go. Soon we will be enlisting the help of some experts to answer questions here, so if there’s something you are curious about, post it here!

 

Share the good news

When people get good news from their doctors, there’s reason to celebrate for sure! There’s also reason to celebrate when someone goes on a vacation, or sees a loved one graduate, get married, have a baby… Often there is reason to celebrate when there’s a birthday or anniversary. Whatever it is, this is the place to pour it out for the world to hear! Seeing these stories can give others reason for hope and cause to look forward to life.

 

Scanxiety

We know that lung cancer survivors go through lots of follow-up, and there can be a lot of anxiety associated with those scans. This is a place for people to get support during this occasional stressful period.

 

Life after Treatment

This is a category for people who are either out of treatment or who have been on a long term therapy like Tarceva for a year or more. People who are more distant from the treatment experience may have different needs than people who are right in the middle of it. There may be long term side effects, there may be anxiety about recurrence once scans stop, or there might be other issues that long-term survivors face.

How do I start a new discussion in a Forum?

When you click on the “Support Forums” option, it will take you to the page where all of the forum topics are.

Click on “+ Add a Discussion,” which is on the right side and slightly above the discussion forum listing. Then take a look at the illustration below to help you find your way around.

How do I reply to someone else’s discussion?

When you decide that you want to respond to something that someone else has written, you can reply directly to what he or she wrote. This may mean that you are replying to the first discussion, or to a reply to that discussion. Here’s how you reply:

Once you have posted a comment or reply, you will have 15 minutes to edit your comment. To edit, place your cursor over the text that you have typed, and you will see that it will turn yellow like this:

When it turns yellow, you can start editing whatever you have written there. Keep in mind, you only have 15 minutes to edit. After that, the only thing you can change is to delete it.

How do I post a “Blog”?

A Blog is a little bit different from a Discussion. A Blog – or “web log” - is like a diary or a journal. You can write about your experiences and make it public for others to read or private just for you.

In order to write a Blog entry, click on “Blogs” to go to the Blog page. Once you are there, click on “Add a Blog Post,” like you see

below:

Then enter the text that you want to enter:

You will see a variety of options related to who sees your blog entry and who can comment on it:

Once you are finished, you can either “Save as Draft” to come back to later, Preview what it will look like, or “Publish Post” and make it official.

What the heck is a “tag” and how do I add them?

A tag is a keyword or phrase that you can add to your discussion post or blog. You don’t have to add tags to your posts, but one way it can be useful is that people who are interested in something you wrote about can search for specific tags.

Here’s how you do it. Once you have written what you want to write in the discussion or blog space, there is a space at the bottom of the page - for discussions, it's right below where you choose the category, or which discussion forum you want it to go in.

For example, if you are posting a discussion related to EGFR mutations, you can tag it by typing EGFR in the tag box. If you want to tag the post with a phrase, you should put all the words in quotations, such as
“EGFR mutation,” or “clinical trial.” If you have several tags, you should separate them with a comma.

What kinds of things can I post on “My Page”?

You can add as much or as little information you want to your page. Whatever you want to add…it’s totally up to you! Take a look at your “My Page” and you will see a few things you can do:

The red circles above show you two ways to edit the content of your page. If you click either one, a text box will open like the one below.

You can type any text you want to into the header and the yellow text field. Sometimes people put their history with lung cancer here. That way, if someone is interested in knowing more about your experience, they can view your profile and see it.

You can also add a picture to this space by clicking on the “camera” icon that you see here:

Once you click on the camera, a box will pop up asking you to choose what photo you want to add from your computer. Once you select your picture, and add it, you will see some wacky text in the box that looks like this:

Don’t panic! It will show your picture as soon as you hit “Save.” This is just the language the computer uses to know what to do.Once you hit Save, you will have a lovely picture on your profile for everyone to see!

Are there any good shortcuts to all of this stuff?
As a matter of fact, there's a quick way to do just about anything you want to do on LungLoveLink. If you click the drop-down box that says "Quick Add" like below, you will see a variety of actions you can take. Just click on whatever you want to do and it will walk you through it!

How do I change my Privacy Settings?

There are a number of things you can do to make sure you are as visible or invisible as you’d like to be. To look at your privacy settings, you will see a selection marked “settings” on pretty much every page, in the box on the right of the page right under where you see your user name.

When you click settings, it will take you to a page where you will see “Privacy” as an option. Click on that option:

How do I change my email settings?

You can decide what email alerts you wish to receive by clicking the "Settings" option (the same place where you changed your privacy settings), and choosing "Email". This will take you to a page with all sorts of options that you can tailor to meet your needs.

How do I report an issue?

You might see a post from someone who claims to be selling a cancer cure, or you might see a post from someone who is being abusive. Or maybe something just isn't quite working the way it should be. Whatever the issue, go to the bottom of every page and you will see how to report it.

How do I delete my account?

Well, we hate to see you go, but we won't hassle you. Go to "Settings" and choose "Profile."

Click on "Leave LungLoveLink" and you will be given the option of keeping all of your posts on the site or deleting everything you have done. You will also be able to tell us why you are leaving. It's always helpful for us to know so that we can try to improve LungLoveLink.