Linking you to resources and support in the lung cancer community!
Lung Cancer Alliance (LCA) recognizes the importance of social research, and the difficulty that researchers sometimes have in reaching those affected in some way by lung cancer. In order to assist researchers to recruit for studies, we have created a space on LungLoveLink, our online support community, for posting studies that survivors and caregivers might be interested in participating in.
Social research
We recognize that social research often contributes to advancing knowledge, quality of life and treatment for lung cancer. As such, LCA is committed to providing a forum for those doing social research to access survivors and caregivers. Studies submitted will be reviewed on a case-by-case basis, however, studies must meet the following criteria:
Studies that meet the following criteria are preferred and will be highlighted:
Studies should be submitted to lunglovelink@lungcanceralliance.org for approval. LCA reserves the right to not approve a study for any reason. Any study posted independently will be removed.
Please allow LCA up to two weeks to review the study before posting. LCA cannot guarantee participant response.
If you would like to find a study to participate in, please see below:
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Stigma and Lung Cancer Research Study at Vanderbilt University
We are pleased to announce an opportunity for patients who have been diagnosed with lung cancer to take part in a research study that is trying to find out about stigma associated with lung cancer and how stigma might influence the way lung cancer patients feel.
We need patients who are willing to complete a one time series of questionnaires. It will take about 35 minutes to complete the study. This study does not involve medication or impact your actual cancer treatment. Questionnaires can be completed on the internet.
If you want to know more about the study or have any questions please
contact Lee Ann Jarrett by email at lee.a.jarrett@vanderbilt.edu or by phone at
1-866-321-5866 (toll free) or 615-343-6313 (local calls) Thank you.
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Research on the Use of Online Health Forums
We are looking for voluntary participants in a research project on the use of online health forums.The aim of this study is to investigate how online health forum users from different medical conditions perceived information and people encountered in online health forums, and how the perceptions affect the use of online health forums. The study is conducted by Ms. Hanmei Fan (PhD student), Dr Reeva Lederman, Dr. Stephen Smith and Dr. Shanton Chang of the Department of Computer and Information Systems at The University of Melbourne.
If you
You are invited to participate in an online survey of about 30 minutes! You will be asked about your last experience in an online health forum and minimum identifiable information will be collected. To show our gratitude, we will raffle off 4 $50 gift cards and you will have a chance to win a gift card of your choice.
The findings of this study can guide the management of online health forums to strategically cater to specific needs of different medical conditioin groups and render a more patient-focused interface design. Thus, the design guideline can help the management of online health forums provide more targeting service with low cost rather than try to do it all.
If you are interested, please visit one of the following link to start: https://www.surveymonkey.com/s/ohforum
Please read the plain language statement and indicate your consent before proceeding to the survey. We are looking forward to hearing from you soon.
This research study has been approved by the University of Melbourne Human Research Ethics Committee (Ethics ID: 1238574).
If you have any questions/concerns or require any further information concerning this study, please do not hesitate to contact Hanmei Fan on T: (03) 83441554, M: 0431456708 or email: h.fan@student.unimelb.edu.au.
Thank you very much for taking the time to read this advertisement!
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Study: Awareness of and Experience with Biomarker Testing (Pfizer)
The approach to diagnosing and treating advanced non-small cell lung cancer (NSCLC) has changed significantly over the past few years with the introduction of biomarker testing of tumors. While strides are being made to generate greater awareness of this diagnostic component, all too often patients with advanced NSCLC do not receive tumor biomarker testing during their diagnosis or treatment plan.
Lung Cancer Alliance in partnership with Pfizer, would like to gain greater insight about awareness of and experience with tumor biomarker testing at the patient / caregiver level. To accomplish this, we would like to request your participation in a brief survey of approximately 20 questions. Your involvement will help us to better understand the key issues associated with biomarker testing and to develop resources to help those impacted by lung cancer. To access the survey please use the following links to take part.
If you are an NSCLC patient: http://survey.alphadetail.com/wix/p2313123070.aspx?group=LCA
If you are a caregiver for an NSCLC patient: http://survey.alphadetail.com/wix/p2315748105.aspx?group=LCA
We appreciate your support and look forward to your input on this important topic within lung cancer. If you have already taken part in this survey simply disregard this message and thank you for your input.
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Study: A Comparative Analysis of Experiences of Empowering Processes Dependent on Member Engagement in Lung Cancer Online Support Groups
Researchers at the Institute of Work Health & Organisations, at the University of Nottingham, UK are looking to investigate how the membership engagement in online support groups/discussion forums/boards for lung cancer may benefit members and if so, in what ways.
They are collecting data by means of a short online anonymous survey which is to be answered by members of varying online engagement (e.g. active posters or those who prefer to read messages only) of suitable online support groups for lung cancer. Participants will be asked to first answer a few questions relating to the extent of which they use the online support group and then be asked to determine their overall online experience by means of rating various outcomes. Please note participation is entirely voluntary and participants may choose to exit the questionnaire at any time without having to provide a valid reason.
Please find the survey can be found in the link below:
https://www.surveymonkey.com/s/M5FTHLH
Please contact Darren Reynolds at lpxdr@nottingham.ac.uk if you have any questions.
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SMOKING CESSATION INTERVENTION FOR LUNG CANCER PATIENTS
A researcher at University of California, San Francisco, Janine K. Cataldo, PhD, RN is recruiting patients for a smoking cessation intervention study that includes a quit smoking program that was designed specifically for intervention diagnosed lung cancer patients who smoke.
If you are a diagnosed lung cancer patient who currently smokes you might be eligible to participate in this study. You do not have to be ready to quit now. You only have to consider quitting.
What will happen if I agree to participate in this study?
Study participation will last for 6 months and require approximately 1 hour and 15 minutes (online and the phone) each month. The total time for the study from baseline to 6 months is approximately 9 hours. Participating in research is voluntary.
CLICK HERE IF YOU ARE INTERESTED IN PARTICIPATING IN THIS STUDY
Questions about this message?
You may contact Janine Cataldo, RN, PhD or Lisa Masai, RN at:
Email: Janine.cataldo@nursing.ucsf.edu
Phone: (415) 476-4721
(415) 476-9512
© 2013 Created by AmyLCA.
