Social Research

Lung Cancer Alliance (LCA) recognizes the importance of social research, and the difficulty that researchers sometimes have in reaching those affected in some way by lung cancer. In order to assist researchers to recruit for studies, we have created a space on LungLoveLink, our online support community, for posting studies that survivors and caregivers might be interested in participating in.

Studies submitted will be reviewed on a case-by-case basis, however, eligible studies must meet the
following basic criteria:

• The study must be in line with the LCA mission to reverse decades of stigma and neglect by empowering those with or at risk for the disease, elevating awareness and changing health
  policy.
• The study must have passed through an IRB or other similar ethics review and approval.
• The study must be funded by public funding, a private non-profit organization, or an academic institution.
• The study must not be registered on ClinicalTrials.gov or be clinical in nature.
• The study must not be product marketing-oriented.

In addition, the submission should include a brief description of the study’s purpose and methods, and how it will benefit the respondents ultimately. The submission must include a contact person, telephone number, and email address.

Please allow LCA up to two weeks to review the study before posting. LCA will not accept payment for any study posted. LCA cannot guarantee participant response.

If you would like to submit a study to be considered, please email
apearson@lungcanceralliance.org

If you would like to find a study to participate in, please see below:

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Symptom Clusters in Lung Cancer Patients

(For people currently receiving treatment for lung cancer or recently out of treatment)

A research study approved by the Virginia Commonwealth University Institutional Review Board (IRB).

You are invited to participate in a research study examining common symptoms experienced by lung cancer patients (discomfort in breathing, anxiety, depressive symptoms, fatigue, and pain) and how these symptoms affect quality of life and ability to perform routine daily activities. If you choose to participate you will be asked to complete an online survey that takes about 20 minutes. You are eligible to participate in this study if you are age 21 or older and have been diagnosed with lung cancer. There are no costs for participating other than the time you spend completing the survey. No information will be collected that will reveal your identity.

If you would like to participate in this study, please click on the link below.

http://www.surveymonkey.com/s/BMZFLGZ   

Please contact Debra Rattican if you have questions: ratticand@vcu.edu

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SMOKING CESSATION INTERVENTION FOR LUNG CANCER PATIENTS

A researcher at University of California, San Francisco, Janine K. Cataldo, PhD, RN is recruiting patients for a smoking cessation intervention study that includes a quit smoking program that was designed specifically for intervention diagnosed lung cancer patients who smoke.

If you are a diagnosed lung cancer patient who currently smokes you might be eligible to participate in this study. You do not have to be ready to quit now. You only have to consider quitting.

What will happen if I agree to participate in this study?

·        You will be encouraged to sign a “smoke free home” contract.

·        Receive an individualized self help manual, feedback report, and 30 minute  counseling session every month

·        Receive weekly support phone calls from project staff

·        If you want to use Nicotine Replacement Therapy, you will be provided with a 10 week supply.

·        In exchange for your time and effort, you will be given a $20 gift card upon completion of the intervention.

Study participation will last for 6 months and require approximately 1 hour and 15 minutes (online and the phone) each month.  The total time for the study from baseline to 6 months is approximately 9 hours. Participating in research is voluntary.

CLICK HERE IF YOU ARE INTERESTED IN PARTICIPATING IN THIS STUDY

Questions about this message?

You may contact Janine Cataldo, RN, PhD or Lisa Masai, RN at:

Email:              Janine.cataldo@nursing.ucsf.edu

                        Lisa.masai@ucsf.edu

Phone:            (415) 476-4721

                        (415) 476-9512