"Hi Becky- So sorry to hear about your diagnosis. I was diagnosed last year with stage 1B and had a left upper lobectomy. Luckily after my first CT I am clear for now. I had a very long talk with my oncologist about treatment- the "what…"
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ElaineK's Discussions
Things my doctor didn't tell me...
11 Replies
Hi All- I had surgery in July- a upper lobectomy in my right lung. I was also diagnosed with emphysema. After my sugery at UCSD (BTW, a great hospital and the best doctors and staff!) I was sent home…Continue
Started this discussion. Last reply by Kenny Dec 23, 2011.
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10 Replies
Hello All- I was just diagnosed with Stage 1B lung cancer in my left lung. I'm 52 years old and WAS a smoker for many years. I'm having surgery in 2 weeks. So far, I'm feeling very positive- I love…Continue
Started this discussion. Last reply by Diana48 May 26, 2011.
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ElaineK replied to cblue's discussion I HAVE A QUESTION
"Hello- It's OK to be concerned, but it sounds like what your doctor wants you to do is normal for that surgery. I assume he wants to check your ox level throughout the day and night. Your pulmonary function will change and improve in the next…"
Kenny replied to ElaineK's discussion Things my doctor didn't tell me...
"I too experinced severe pain. Had my upper right lobe removed. That was in Jan. 2008. Still feel a little sore at times. But I agree that is one of the most painfull and long lasting pain I have ever had, No fun at all. I did find the sooner you can…"
ElaineK replied to John H MOD's discussion Limitations and how to deal with them
"Hi Carolyn- Thanks for your post! It's good to hear from someone who gets what is going on. My family keeps telling me that I just need to excersize more and I will be able to breathe better. They don't understand that I can't BREATHE…"
LeeMy49 replied to ElaineK's discussion Things my doctor didn't tell me...
" Just a few words to give you some peace.. I still have a little pain and mind was in Oct. 2006. I think mind is just the nerves acting up in the incisions. My Dr. tryed less invasive procedure, they were just suppose to take a pie portion but…"
ElaineK replied to ElaineK's discussion Things my doctor didn't tell me...
"Merry- Thanks so much for your post! Sounds like you've been through a LOT! I had a lot of strange after-effects as well. Food tasted different and now my hair is falling out in clumps. No, I didn't have chemo or radiation- apparently the…"
ElaineK replied to ElaineK's discussion Things my doctor didn't tell me...
"Hi- Thanks for the reply! Sorry to hear about your recurrence. I pray everything will work out for you. Keep fighting and stay strong!
Elaine"
ElaineK replied to ElaineK's discussion Things my doctor didn't tell me...
"Hi- Isn't it funny how some people can just sail through things that would bring someone else to their knees? That's what is so amazing about the human body- everyone reacts differently. It's funny- when I asked about the surgery, I…"
ElaineK replied to ElaineK's discussion Things my doctor didn't tell me...
"Hi Amy- Actually, my surgeon told me I would have severe pain, but I didn't know it would last as long as it did. When I was still in severe pain 2 months later, my surgeon told me it could last from 3-4 months. And the worst of the pain…"
ElaineK replied to ElaineK's discussion Things my doctor didn't tell me...
"Thanks to all of you for your replies! I hope I didn't give the wrong impression about what happened to me- of course everyone is different and the post-surgical pain can vary from person to person. However, my surgery was in the upper left…"
Merry replied to ElaineK's discussion Things my doctor didn't tell me...
"Absolutely!!! But everyone reacts differently with pain. I had terrible cramping after my first surgery that was a lower right lobectomy. I can still feel a twinge every now and then after 14 years. I also had 2 broken ribs and was never told about…"
LeeMy49 replied to ElaineK's discussion Things my doctor didn't tell me...
"Dear Elaine, I went through the same thing! But, I went to get my reports, I even looked at them after they did them. I was told I couldn't do this. I told them it was my lung and I was paying for it. You have rights and make sure you use…"
GADawg/MOD replied to ElaineK's discussion Things my doctor didn't tell me...
"Hi Elaine,
My mom had an upper right lobectomy and the docs warned us it was going to be really painful and a slow recovery. But then she sailed through it! Off pain meds and back on her feet almost 100% within a month. So you never know, like Amy…"
AmyLCA replied to ElaineK's discussion Things my doctor didn't tell me...
"Hi Elaine,
One of the reasons your doctor didn't tell you those things about pain is because not everyone experiences what you experienced. Some patients have a few days in the hospital with pain that is controllable and then spend…"
ElaineK posted a discussion
Things my doctor didn't tell me...
Hi All- I had surgery in July- a upper lobectomy in my right lung. I was also diagnosed with emphysema. After my sugery at UCSD (BTW, a great hospital and the best doctors and staff!) I was sent home after 9 days in the hospital with a lot of pain meds and a big bill.Nobody told me how painful this surgery is- my primary care doctor finally told me after I'd been in horrible pain for 2 months that it's the most painful surgery you can have! It takes 4-6 monthe to fully recover.I think if I'd…See More
ElaineK replied to AmyLCA's discussion What's your latest "good news"?
"After having a lobectomy in July, and being totally clear I'm finally feeling better! I was surprised at how long the recovery is for this surgery. And the pain- UGH. But even though I'm a little sore and still can't lift, it's…"
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