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Erin's Discussions
NED again!!!
12 Replies
Just got back from Boston (where I had my RLL removed 12/07) and I had ANOTHER clean CT scan!!!! Many of you here know that I was REALLY worried about this one - and I thank you for your support! …Continue
Started this discussion. Last reply by G free from lung cancer Apr 6.
Possible Bug
8 Replies
It appears that the number of discussions per category/forum, along with the date and/or time of last entry is not being properly updated on the Support Forums page. No big deal, but I thought I…Continue
Started this discussion. Last reply by Erin Jul 28, 2010.
I Just Hate This
5 Replies
Most of you know me. I am a 2.5 yr lung cancer warrior. I am also a friend to many other cancer fighters. I am upset tonight. My friend Thelma, and 89 year old woman, is losing her fight with her…Continue
Started this discussion. Last reply by GADawg/MOD Jul 9, 2010.
Anyone Still Have Pain?
10 Replies
I had my right lower lung removed in December of 2007. The surgeon tried to do VATS, but it turned out that I needed the full-blown Thoracotomy and a Wedge Rescection of my RUL. I had 2 chests…Continue
Started this discussion. Last reply by della Jul 26, 2010.
Erin's Page
Latest Activity
Erin replied to Erin's discussion NED again!!!
"Thank all of you for your support! I hope some day we will have most, if not all, of message in LCA in the Share the Good News forum!!!
Erin"
John H MOD replied to Erin's discussion NED again!!!
"Hi Merry, there is no such thing as a stupid question as my mother used to say. NED is "no evidence of disease". We all hope and pray for everyone to hear these words.
John"
Merry replied to Erin's discussion NED again!!!
"This is terrific--pardon my stupidity but what is NED?"
karenA replied to Erin's discussion NED again!!!
"Hi Erin
Awesome! Congratulations! Here is to continued NED for you and so many others! Our goal is to have many more of these announcements - truly something to celebrate!
God Bless!
Karen"
pat ryan replied to Erin's discussion NED again!!!
"John what a wonderful email,so inspiring ,keep doing what you do and encouraging others to do the same.The world needs people like youPat
"
John H MOD replied to Erin's discussion NED again!!!
"Hi Erin, congrats on the NED! It is so hard to have to wait for results.
I know some people have the results the same day. How miraculous is that. I have never had that pleasure and its been 12 yrs for me. Some day maybe more people will have…"
DavidatpMOD replied to Erin's discussion NED again!!!
"CONGRATS Erin. These scans are hard to wait for but once we get the NED it's great... Keep it up...
David
"
Erin posted a discussion
NED again!!!
Just got back from Boston (where I had my RLL removed 12/07) and I had ANOTHER clean CT scan!!!! Many of you here know that I was REALLY worried about this one - and I thank you for your support! That makes 4.5 years NED!!! Yippee!!! See More
Erin replied to BradC's discussion Father-in-Law just diagnosed with Stage 4 lung cancer
"Brad,
I don't have a specific hospital to recommend, but it is my opinion that a hospital in a larger metropolitan area (preferably a teaching hospital if possible) and doctor(s) that specialize in Lung Cancer should be a…"
Erin replied to cmathwhit's discussion Cancer number -- what is this?
"Cher, There are a couple different numbers... One is the stage of cancer - that will be a I, II, III or IV. Another is based on the size of the mass/tumor found (T), whether or not nodes have been effected (N) and if the cancer has…"
Profile Information
- Why are you interested in this topic?
- I have/had lung cancer, I am a lung cancer advocate
RLL 12/19/07. Cancer was not diagnosed until the 7 cm mass removed with the lobe was biopsied. I had gone 7 months with the mass being diagnosed (in my small town) as something that 'looks like pneumonia, but doesn't act like pneumonia'. Luckily I got in to see some doctors at BWH in Boston. They did not stop until they could absolutely, positively tell me what was going on in my chest!! My philosophy about the big "C" - I am going to beat it, and have fun while I do!!!
12/2007 Surgery, RLL removed, Cancer diagnosed
Mucinous adenocarcinoma, mixed subtype, with acinar (40%), papillary (40%) and bronchioloalveolar (20%)
2/2008 10 wk CT scan - NED
3/2008 Chemo (Cisplatin/Nevelbine) started
5/2008 First NED CT scan following chemo! I am pumped!!!
7/2008 Second NED CT scan!! Am I on a roll or what?!?!
11/2008 Third NED scan - YIPPEE!
05/2009 Fourth NED scan - I've got the beast on the run!
11/2009 Fifth NED scan - 2 years Cancer Free!
05/2010 NED again!!! This is SO COOL!!!
Comment Wall (6 comments)
- At 12:48pm on March 6, 2012,
bronie2MOD said… Great Erin..talk soon...Tonie aka bronie
- At 3:41pm on July 21, 2010,
skimom said… - Thank you for the invite! I certainly need more friends like you at this time. :)
- At 10:41pm on June 15, 2010,
DavidatpMOD said…
- Yes, the submarine dolphins. I was on subs for about 15 years...
- At 11:47am on June 6, 2010, JanSoCal said…
- My pleasure. I must say I thoroughly enjoyed your discourse on the way animals accept and respond to their illnesses. Bravo! We super-animals still have much to learn, Jan
- At 9:38pm on May 12, 2010,
Maribeth Wall said… - Hi Erin - I hope you are doing okay. It is always good to get away no matter where it is. Some days I am happy just to take a day off of work and do nothing! Hope whatever you had done went well and you are back to having fun again. That is good you go 6 months without a scan. That is my goal for next year. My doctor is just starting to let me go every four months for now, though today I talked him into a fifth month so I hope I don't regret that but I feel good and he is okay with it. I told him I am not getting a scan around my birthday in September so he is just going to have to wait unless I feel something happening!! That is good you get to visit your mom. I miss having my mom around during these times. She passed away four years ago from Pancreatic cancer at the age of 65, way too young. So when I was diagnosed I so missed having her to be there for me but I know in spirit she is there. Anyway, I am tired, I had a busy day at the doctor today. I got great news that my cancer is still stable and nothing is happening so my friend and I went out and celebrated but I am so ready for bed now!!
Talk to you soon.
Maribeth
- At 11:44pm on May 7, 2010, Maribeth Wall said…
- Hi Erin -
That picture is my get away picture. During the summer right after I was diagnosed with lung cancer a good friend of mine would pack me up in her car and we would go to the beach in Bridgman, MI on the Saturdays I felt halfway decent and not a chemo week. That was my peace and tranquility time to do nothing but enjoy the waves and the sunshine. Ever since then her and I pray for good weekends during the summer to just get in the car and get away for the day. It is only 1 1/2 hour drive from my house so it isn't to bad.
Do you have any special place or thing you do to just get away and focus on just you time? I know I never thought of it much before but I sure do now. I hate to say it but I almost get selfish at times wanting time to have to myself. I am not married or have kids but I still need time away from work and everyday things. How about you?
Opps, got to get to bed.
Talk to you soon.
Maribeth
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