"We'll keep the prayers going that it is nothing major. Glad you are feeling better. Try to keep those fan blades clean!
"
Linking you to resources and support in the lung cancer community!
John H MOD's Discussions
My first grand baby is due in September
1 Reply
With all that's going on in my life these last couple of weeks. I have also had some great news . My son and his wife are expecting a baby in the month of September. I'm not quite sure how grandpa is…Continue
Started this discussion. Last reply by MaureenLCA May 17.
A new battle - COPD
24 Replies
Hi everyone, I have been trying for the last six months or so to ignore what was happening. I mean I noticed but you know sometimes you can convince yourself of anything. I have been having a…Continue
Started this discussion. Last reply by sbarnes1963 on Tuesday.
Survivors navigate life after treatment
3 Replies
Hi everyone, I was just reading the local small town newspaper and there it was. An article about helping cancer survivors navigate life after treatment. In a nut shell the article was about www.…Continue
Started this discussion. Last reply by Rich May 1.
My latest rage!
13 Replies
Hi everyone, I hope everyone has been enjoying spring. I was until tonight.Ok maybe I am still enjoying the renewal process that this time of year brings.I was just reading the latest edition of my…Continue
Started this discussion. Last reply by AmyLCA Apr 17.
John H MOD's Page
Latest Activity
John H MOD replied to birdlady053's discussion Getting results from pet scan tomorrow
"Hi Victoria , I was just diagnosed with COPD andim also a 3A NSCLC. I think id go with infection unless and until you have proof positive of what it is. I would also be looking and thinking of a second opinion. I mean if they can't tell you 100…"
John H MOD replied to Toad's discussion New to this forum.
"Hi Todd, I am a twelve year 3A NSCLC . Please believe me you are still in the game. The waiting is always brutal. I try to live today for today. You can't change what has already happened NPR what's to be. Keep pushing the docs for…"
John H MOD replied to Maribeth Wall's discussion M.S. and NSLC stage IV
"Maribeth, as you know , you have a great attitude. I have always said it is better to laugh than cry. I just can't get around the situation you have. I use the serenity prayer a lot in my life. You can only change some things in your life. The…"
John H MOD replied to Maribeth Wall's discussion M.S. and NSLC stage IV
"Oh I'm so sorry Maribeth. Congrats on the 5 yr anniversary ! I can only sympathize with you on the MS. li
In for a penny , in for a pound I guess. You know you survived cancer so now you are fair game for any other life threatening disease that…"
Maribeth Wall replied to John H MOD's discussion A new battle - COPD
"That is good news to hear John. It is amazing how 30 days can seem like a lifetime away but praying the scar tissue is just scar tissue and everything will be cleared up by end of June.
Maribeth"
John H MOD replied to John H MOD's discussion A new battle - COPD
"I found out my results. Good I think. The doctor said it looks like scar tissue from this bout of pneumonia. But isn't there always a but, he says that there was an infiltrate that there not sure of ( what ever an infiltrate is?) and they think…"
Carolyn replied to John H MOD's discussion A new battle - COPD
"Hi Ronni,
I am so sorry to hear about all your medical problems. Darn it.. I have had my right bottom lobe taken with cancer. I also have COPD (bronchitus & asthma). There is a new pill out for COPD. It is called…"
Carolyn replied to John H MOD's discussion A new battle - COPD
"God bless you John. I will be praying for you. I know I don't like the waiting game either. But really that is all we can do I think. That is a pretty good idea camping out there. Don't forget your…"
John H MOD commented on marilyn's blog post Remission and Depression
"Hi Marilyn, I first want to say you can be happy again. It isn't going to happen over night but you can be once again happy, healthy, and whole. I am a 12 year 3A NSCLC survivor and as someone who has dealt with depression my whole…"
Maribeth Wall replied to John H MOD's discussion A new battle - COPD
"Hi John - Keeping good thoughts and prayers going for you. Scanxiety bites doesn't it! I think we could be a 100 year survivors and that darn scan will knock us to our knees!
God Bless.
Maribeth"
sbarnes1963 replied to John H MOD's discussion A new battle - COPD
"Saying prayers for the very best :)
"
John H MOD replied to John H MOD's discussion A new battle - COPD
"Hi everyone, just had my CT and now I sit and wait. I have to say this scan was fast as compared to six or seven years ago. Now hopefully the results will be as fast. I guess I want to know but then I think maybe not. Scanxiety raises it's ugly…"
John H MOD commented on karenA's blog post 5 year anniversary - follow up CT scan
"Hi Karen , welcome to the ever expanding world of long term survivors! We welcome you with open arms and a huge hug! Congratulations on your accomplishment! I hope you have many many more anniversaries.
God bless, John"
John H MOD replied to Jacki's discussion Nausea following chemo
"Hi Jacki, I haven't been in treatment for about 11 years but I do know that there are others here who will have a lot of info for you. I do though know that you are doing the right thing by being here and you are doing it the right way. I wish…"
Ronni replied to John H MOD's discussion A new battle - COPD
"Hopefully whatever 'man' made that gave us these diseases they figure it out for future generations. Progress has been on breast and prostate, with identifyable DNA. Lung cancer has affected many, something nothing new…"
Profile Information
- Why are you interested in this topic?
- I have/had lung cancer
IN progress
Comment Wall (21 comments)
- At 4:19pm on May 4, 2012,
Nadine said… Hi John
Thank you for the warm welcome and I'm glad to be here. :-)
- At 9:10pm on March 14, 2012,
cblue said…
Thanks so much for making feel welcome John!
- At 8:10am on February 20, 2012,
Mary said… Hi John,
Thanks for the warm welcome! I need to introduce myself, but in the meantime, I'm Mary, live in southern NH (lovin' this winterless winter!), and have ALK+ stage IV adenocarcinoma. I'm a nurse practitioner so I'm pretty well versed in my treatment and am an active decision maker in my care. I'm also a zero risk factor life-long never smoker, so this diagnosis was a real shock!
I look forward to sharing with you and the community!
Mary
- At 6:55pm on July 18, 2011,
eric byrne said… Hi John,
Its been a while since I last heard from you,I am in the USA,on a 7 week tour,I have been to Philadelphia,Richmond,Washington DC,currently in Boston until tomorrow (Tues)Then its to Niagara Falls,Cleveland,Chicago,StPauls/Minneapolis,Montana then Seattle I am doing a walk for Lung Cancer in Lincoln Park on Saturday August 13th,at the end of the walk,I am a guest speaker,sharing a platform with Dr Jack West of www.cancergrace and a American Senator who is a Lung Cancer Survivor,a real inspiration, sorry I dont have his to hand at the moment,you may know him being an American yourself .I have been having such a wonderful time,meeting so many Americans,their generosity to me has been amazing.You can follow my journey on www.LUNGevity.org www.facebook/com/LUNGevity or on www.facebook.com/LUNGevityEric. Bye for now.
- At 9:56am on June 24, 2011, eric byrne said…
commercial break over-Hi John ,
Sorry about that,I do have a problem with keeping things short.My American holiday starts at Philladelphia airport on Saturday 2nd July at 3.25pm,over night stay at the aLoft hotel nearby,then Sunday morning 8.35 am train to Richmond arrive 1.00pm,I am meeting several LUNGevity friends throughout my visit,so LC suvivor Annette and her husband Keith are meeting me and taking me to the Ramada hotel,I stay there until Thursday when we all set off for Washington DC,I am going to LUNGevity,s office there to attend a press conference being held for me and get fixed up with the further arrangements for my journey.
I have a Amtrak rail pass that gives me any 18 journeys in the USA for a period of 45days,so my route is New York,Boston,Niagara Falls,Cleveland,Chicago,St.Pauls/Minneapolis,Grand Forks,Montana-Glasgow,Yellowstone,National Glacier Park,Dinosaur Valley,hoping also to visit the Crow and Blackfeet Reservations if accessible to tourists?.Then on to Seattle,Vancouver,back to Seattle then fly home on 19th August.En route,I will be meeting several LUNGevity members,apparently I will film thse meetings?to allow all the members og LUNGevity to view in on a created web-site designed for me?details given to me at Washington DC.
The problem for the PR firm is I have a route but no real time table,my idea was not to book hotels on the way,but just drift as the mood takes me eg,I have never been to the USA before,3 days in New York?,3 days in Boston? how on earth, does one decide?I only have 7 weeks.Well John think I have bored you long enough,hope we can contiue to comminicate,bye for now.
- At 9:27am on June 24, 2011, eric byrne said…
Hi John,
I am absolutely delighted to meet you,I must confess at this moment I am a little disorientated in using this web site (Robert Lowe introduced it to me about an hour ago).I have so much to share with where do I start?.Well I am married to Sally, I have a grown up daughter Jennifer,I have just retired 4 weeks ago from being a Senior Lecturer in Design and Construction in a College of Further Education after 39 years,it was time to hang up the chalk.Since my diagnosis,I have become very pro-active in lung cancer advocacy.To explain why-I was invited last year as an Advocate for the Roy Castle Lung Cancer Foundation.org, to attend a cancer conference at Stirling University by Cancer Research UK,on the platform were top Scottish Politicans and Oncologists specialists in most cancer fields,(none from lung cancer Iam afraid)this group of individuals are resposible for the allocation of funds towards research projects in the UK.Having listened to each of their presentations of their paticular interests in the field of cancer,we the audience were given the opertunity to put questions to the panel.I asked why if lung cancer is the UK's biggest killer (42,000) which greater than the combined totals of breast,protrate and bowel cancers,why does LC only get a 4% share of your budget?.
Answers- Well its not a sexy cancer; Dos'nt affect children; Its largely self-inflicted; Well lung cancer survivors are very poor advocates in promoting their cause.Well indeed the last comment stung me most,I promise to represent lung cancer as a survivor as best I can,by what ever means.So I joined Roy Castle,help fund raise,public speaking and being a telephone buddy.I write daily into LUNGevity and Post my Scottish themed pics into their Photo Album forum.I am also a moderator for two of the forums there.
Sorry ran out of letters allowed?
- At 3:45pm on May 8, 2011,
marilyn said… Dear John:
Thank you for your message regarding memory loss. There are times when it's actually funny (like not remembing the words peacock or squash), but it's also embarrassing. Do you know of anyone's blog I can read that starts at diagnosis and addresses all the other problems with this disease (memory, family, hating one's body, etc.)? Of course there are books, but I would be most comforted to read about a person's experience with losing control, feeling nuts, dealing with family members that are in denial (my mother), etc.?
I'm happy you're back at work. Did you go one disability? I was told I would work again and also told I would not. So confusing.
I hope this Sunday finds you feeling well and happy.
Best, Marilyn
- At 3:06pm on January 4, 2011,
AmyLCA said… - John - you are looking dapper in that new picture! Is that your family? What was the occasion?
- At 12:08am on January 4, 2011,
kindredspirit said… - Hi John Happy New Year to you ! Love your wall Doris T
- At 8:05pm on December 31, 2010,
drawing3d/MOD said… Happy New Year John!! May 2011 be the wonderful year we all pray for and so richly deserve :)
God bless -
Ellen
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