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jojoaunt
  • Female
  • Sun City, AZ
  • United States

Jojoaunt's Friends

  • phoenixmom
  • cblue
  • Mary
  • DavidatpMOD
  • Maribeth Wall

jojoaunt's Discussions

Another Good CT scan.....Yipee!!
32 Replies

Hi everyone, just wanted to update you on my recent CT scan.  I have no more fluid in my lungs since the catheter was removed and none has returned.  Yippee!!  Also, no tumors in my bowels or…Continue

Started this discussion. Last reply by Maribeth Wall Jul 27, 2012.

Alimta?
52 Replies

Dear Friends,Hopefully many people have been on Alimta and have had certain reactions and suggestions for these reactions.  The only side effect I noticed is that I had a little trouble with…Continue

Started this discussion. Last reply by Trish1941 Jan 3.

Good CT scan :-)
7 Replies

Hi all, just wanted to share my good news.  I recently had a CT scan that has shown my tumors have shrunk and my fluid is slowly going away.  I know it doesn't sound like much, but to me, it was the…Continue

Started this discussion. Last reply by jojoaunt Jun 11, 2012.

A pleural catheter?
10 Replies

 Hi everyone. Well they have scheduled me to get a pleural catheter put in on Tuesday. I'm very nervous about it. Has anyone else had this done. I have fluid in my lung that is just not going away…Continue

Started this discussion. Last reply by Grandmado May 6, 2012.

 

jojoaunt's Page

Latest Activity

Trish1941 replied to jojoaunt's discussion Alimta?
"I have been having Alimta since March 2013 and get short of breathe about 7-10 days after treatment. Just when my eyes start to water. I guess it is the action of the chemo kicking in"
Jan 3
Ruth replied to jojoaunt's discussion Alimta?
"I am on alimta and avastin every three weeks maintenance and I am good , besides high blood pressure and swollen feet. It will be a year for me 12/6/13. I also did 6 doses of cisplatin and my tumors have shrunk each CT scan. Lately though I am very…"
Oct 17, 2013
Alisa left a comment for jojoaunt
"I am on aimta."
Mar 21, 2013
diagnosed with stage 4 lung canc replied to jojoaunt's discussion Alimta?
"Hi Alisa, good to hear from you.  How long in total have you been on Alimta???  I have my dose every 3 weeks then a ct every 9 weeks. As far as I know I am on the full dose as my onc has not mentioned a reduced amount.  I think he is…"
Feb 28, 2013
Alisa replied to jojoaunt's discussion Alimta?
"Hi there its Alisa, and here we are in February. I'm still on the Alimta but they reduced my dose by twenty five percent and that made a huge difference. Now my tumors are not growing and I'm stable. I have the Alimta every three weeks and…"
Feb 28, 2013
diagnosed with stage 4 lung canc replied to jojoaunt's discussion Alimta?
"Hi I have just joined this website.  I to am on Alimta I am now into round 2 which is another 6 rounds then a scan.  I have had ongoing stomach issues especially day 2 and 3 after chemo.  I now do the following: when I…"
Feb 27, 2013
diagnosed with stage 4 lung canc replied to jojoaunt's discussion Alimta?
"Hang in there - I am on Alimta and going okay I have just joined this site as a member and it is good to hear how others are going. My intro to this site is let me tell you my story. be positive it really helps. Regards Sue from Perth WA."
Feb 27, 2013
phoenixmom replied to jojoaunt's discussion Alimta?
"Hi Alisa, I will be keeping you in my prayers as you approach Thursday's scan.  Glad to hear you are feeling better since you are on a lower dose of Alimta.  Keep me posted on your scan results.  Hoping for the best! Bless…"
Sep 17, 2012
Alisa replied to jojoaunt's discussion Alimta?
"Hi Susan, and thanks for your response. I am currently getting treatment in Grapevine,Tx, as it is closer to home and my check-ups and direction from MD Anderson in Houston. I am going back on Thursday the 20th for cat scans, blood work, and to…"
Sep 17, 2012
Gail D replied to jojoaunt's discussion Alimta?
"Thanks Susan,  I think I am gearing toward getting the chemo.  My hair is starting to grow back so I am a little bummed I may loose it again.  My doc say I only need 5 rounds  (every three weeks for 4 months) so I guess I can…"
Sep 15, 2012
phoenixmom replied to jojoaunt's discussion Alimta?
"Hi Alisa, I am sorry to hear that you were having so much pain and in bed so much when on the Alimta.  It really is hard when you can't even get out of bed!  Glad you are feeling better on a lower dose of Alimta and so glad to hear…"
Sep 15, 2012
Alisa replied to jojoaunt's discussion Alimta?
"Hi Susan, thank you for sharing your info, it gives alot of hope for others including myself. I was dx NSCLC stage 3 with a softball size tumor in my upper right lobe and lymph node involvement in October 2010. I have been treated with chemo and…"
Sep 15, 2012
phoenixmom replied to jojoaunt's discussion Alimta?
"Hi Gail,  Of course.  I was dx NSCLC adenocarcinoma stage 3B March 2011.  I had a small tumor (2.5 cm) in left lower lobe and lymph node involvement- left hilar, left and right mediastinal, left and right supraclavicular and…"
Sep 14, 2012
Gail D replied to jojoaunt's discussion Alimta?
"Hello Phoenixmom, I am scrolling away on this site, and I noted that you were on Cisplatin/Almita.  If you do not know, I was dx in NSCLC this past June - two primary sites.  One which is 1a and they they did a wedge resection on my lower…"
Sep 14, 2012
jojoaunt replied to jojoaunt's discussion Alimta?
"Thanks for your input Alisa and SantaTeresa, It's always good to know how others are doing on Alimta.  My tumors have shrunk as well but right now I have such a horrible cough that will not go away.  I am trying Zyrtec to see if this…"
Aug 22, 2012
SANTATERESA replied to jojoaunt's discussion Alimta?
"I have done 7 treatments of Alimta I recently started every 4 weeks.  My symptoms are very much like you guys, Tired.  I am also 51 and recently left my job of 32 years to stay home and concentrate on me.  I am lucky my children are…"
Aug 22, 2012

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I have/had lung cancer

Jojoaunt's Blog

Good CT Scan....

Hi all, just wanted to share my good news.  I recently had a CT scan that has shown my tumors have shrunk and my fluid is slowly going away.  I know it doesn't sound like much, but to me, it was the best news I have had since been diagnosed with stage IV lung cancer on Valentine's Day!!  I guess between the weekly chemo and the 30 radiation treatments, the tumors have shrunk.  Now to keep it going.  I will be starting Alimta every three weeks beginning May 22nd.  After three or four months,…

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Posted on May 20, 2012 at 9:03pm

Hi all, I have stage IV lung cancer and would welcome your help.

I have been looking for a support group where I can talk to others that are going through lung cancer and certain treatments to help me understand that I am doing the right thing.  I am very scared and hope that being a member here will indeed help me find answers and friends.  I have stage IV lung cancer.  I have a tumor on my left lung as well as a couple smaller tumors on my lympnodes in my left lung and the fluid in my left lung also has cancer cells.  Thus the stage IV I guess.  I am…

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Posted on March 22, 2012 at 7:42pm — 36 Comments

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At 1:10am on March 21, 2013, Alisa said…
I am on aimta.
 
 
 

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