"I don't know the dose, but he has had five rounds and the doctor decided to stop the chemo. He ended up in the hospital last week for one night. He had diarhhea so bad he lost 11 pounds in a 24-hour period and was dehydrated. He's okay now…"
Linking you to resources and support in the lung cancer community!
littlelady4220's Discussions
PET Scan Equivalent?
9 Replies
My husband's insurance will not pay for a PET Scan. They only pay for the one at time of diagnosis, and will not pay for monitoring during chemotherapy. He is due for another one in two weeks, and…Continue
Started this discussion. Last reply by AmyLCA Jan 26.
SCLC - Recurrent
6 Replies
I'm back, with more questions.A brief history here - my husband was diagnosed 1/11 with SCLC, 3 tumors in lung, one in each hip, one in liver. Had six rounds of carbo/etop, finished in June and the…Continue
Started this discussion. Last reply by littlelady4220 Mar 27.
littlelady4220's Page
Latest Activity
billyv replied to littlelady4220's discussion SCLC - Recurrent
"Hi, do you know the dose of the topotecan, just 1/2hour per day that is very short does he get any iv before thanks Bill"
billyv replied to littlelady4220's discussion SCLC - Recurrent
"Hi, small cell lung cancer does respond well to first line of chemo,but sorry to say most of the time it comes back ,I hope is dose not . Bill"
AmyLCA replied to littlelady4220's discussion PET Scan Equivalent?
"Hi littlelady,
Is the tumor in his liver the only one present? Might be worth asking his doctor about a procedure called Radiofrequency Ablation, or RFA. It is sometimes used to kill liver tumors.
Has your husband considered…"
littlelady4220 replied to littlelady4220's discussion PET Scan Equivalent?
"
Now that my husband has had his PET Scan, here are the results - and some questions - again!
A brief history - he was dx 1/11 with SCLC-Extensive, went through six rounds of carbo/etop, had a PET Scan 6/11 and it showed of the six…"
AmyLCA replied to littlelady4220's discussion PET Scan Equivalent?
"Oh this must be so frustrating. But my guess though is that the CAT scan will be able to tell much of what needs to be known. And I wouldn't worry about the radiation exposure - not to concern you but CAT scans have radiation too, but it's…"
littlelady4220 replied to littlelady4220's discussion PET Scan Equivalent?
"You are completely on target. I did not know there were organizations such as these and I appreciate so much that you have given me their contact information.
The oncologist's office has tried everything, even to the point of recoding,…"
AmyLCA replied to littlelady4220's discussion PET Scan Equivalent?
"Hi littlelady,
If I understand correctly, your husband has recurrent metastatic small cell lung cancer. It was diagnosed in Jan, so that was the first staging PET. Then he had a PET in June, which I presume was when he finished…"
Sarge replied to littlelady4220's discussion PET Scan Equivalent?
"Good idea Niti/MOD................also, if I may suggest...........I would also be actively seeking a second opinion from another oncologist. I did not have a second PET until 12 months out from last treatment (2.5 yrs. ago, and have not had…"
Niti/MOD replied to littlelady4220's discussion PET Scan Equivalent?
"I am going to ask someone at LCA for suggestions on how to help you. Stay tuned!
Niti"
littlelady4220 replied to littlelady4220's discussion PET Scan Equivalent?
"He had the one scan in January 2011, that was a diagnostic tool and they paid for it. Then they did one in June and October 2011, they were denied and we are now stuck with thousands of dollars. The doctor wants to do another one in two weeks, we…"
Niti/MOD replied to littlelady4220's discussion PET Scan Equivalent?
"Something is not right. Typically re-staging LC (meaning checking to see if chemo has worked) can be accomplished with a CAT scan. If, for some reason, your husband must have a PET scan, then you can appeal the insurance company's…"
littlelady4220 posted a discussion
PET Scan Equivalent?
My husband's insurance will not pay for a PET Scan. They only pay for the one at time of diagnosis, and will not pay for monitoring during chemotherapy. He is due for another one in two weeks, and please, please - is there anything else that can be used as an equivalent for a PET Scan? A CAT Scan is not enough.Thanks!See More
littlelady4220 commented on sclcsurvivor's blog post Who says you can't survive small cell lung cancer?
"This gives alot of hope to alot of people. Was this limited or extensive sclc?"
littlelady4220 replied to littlelady4220's discussion SCLC - Recurrent
"An update - doctor has him now doing chemo again, topotecan. 1/2 hour per day for three days, then three weeks off. He started it last week. Then a scan after the second round. Doctor says that this chemo has a 30-35% chance of working, as opposed…"
littlelady4220 replied to littlelady4220's discussion SCLC - Recurrent
"Thank you. We see the oncologist later this morning and hopefully will get some good answers."
Profile Information
- Why are you interested in this topic?
- I know someone with lung cancer
Comment Wall
- No comments yet!
© 2012 Created by AmyLCA.
