All Blog Posts (173)

my husband 1st had a brain tumor which was an adenocarsinoma with characteristic of spread from lung, but no primary was found. After surgery they radiated the spot. then another brain tumor showed up and that was successfully radiated. Finally in Dec. a small nodule in the lung showed PET active. It was radiated. Now they do chemo with Alimpta and Carboplatinum, 2-4 treatments 3 weeks apart.  Nancy

my husband starts chemo next and was looking for a forum where others were in the same boat. I see posts where spouses are stressed because their affected person is too careful of infection. I have the opposite problem where mine finds it annoying to wash hands, not touch doorknobs, use disinfecting gel etc. and I am the one worried about the consequences. It is very stressful for me, no so much for him.

Does anyone have any help for facial swelling?  I am in month 6 of Avastin, Alimpta, Carbo.  Take Dexamethasone for 3 days every 3 weeks (day before, day of and day after treatment). Each month it is getting worse, along with abdominal swelling - any suggestions would be appreciated.  Already cut out salt and drink lots of fluid (which I don't seem to be shedding).  Hope to hear from fellow survivors.

Greetings!

If you are on the Lung Cancer Alliance mailing list, you may have received our New Directions Newsletter a few months ago. This newsletter comes out once a year and highlights lung cancer research so that everyone can stay up to date on what is happening and what advances have been made.

We are currently requesting feedback on what people think of this newsletter as a resource and we are considering making changes to the format and content for…

I stopped  smoking on 7/29/09 on the way to the hospital to have my upper left lobe taken out.  It was a very small tumor so I figured I would smoke up until then.  I have not smoked since.  When I get really stressed I think about it but I know I won't be able to stop at one so I don't start.3 months later the cancer came back so I had 3 rounds of chemo and 36 radiation treatments.  December 28th will be 3 years that I started treatment.  I ended up with post thoracic pain syndrome from…

Has anyone on disablility had to do an SSDI review? If so, when did you have to do it and what was involved? Mine will be coming up in less than a year and I would like to know a little bit about what to expect. Thanks for any input. Good luck, God bless and keep the faith...

David

I drink alot of ice water (it has to be ice water) and love to eat ice cream.  I was wondering today if the cold would make me feel as though I was getting more oxygen.  This probably sounds crazy.  I take a big cup of ice water everywhere I go. If anyone thinks this is crazy or it makes sence please let me know Thank you.

God bless all of you and to all of you Merry Christmas

Carolyn

I have survived SCLC (caused by agent orange in Vietnam) for 3 years

•  I survived (though my family was told I only had hours to live) a seizure caused by SCLC in 2008
• I survived 6 different lines and 88 treatments of chemo
• I survived 88 sessions of radiation
• I survived 15 sessions of brain radiation and my last MRI confirmed I still have a brain.
• I survived (though my family again was told I had hours to live) a recent episode of acute…

Today the Richmond Times Dispatch published an essay I wrote about early detection.  My sister Wendy died in August 2010 and I am determined to make a difference in as many people's lives as I can.  I have had two CT scans and so far the two nodules they found have not changed...we will keep scanning and pray there is never a change. I pray for all of you who are suffering with Lung Cancer.  My time with my sister was so difficult.  Watching her in panic from not being able to catch her…

Hi everyone. I am very blessed considering some post I have read so I feel a little like a complainer but I do have questions.

I had surgery almost a month ago and am doing well. I believe they got it all. I will see the dr next week and get an update. Everything has a funny taste to me. Has anyone else experienced this?  I don't have an appetite. What I used to love to eat now makes me queasy. 

And this cough, what's that about?? I didn't have one before 

OK I'm through…

Burn has lasted 12 days now and still burns and itches. Applying creams, etc. 3 or more times a day. Could anyone tell me how long these burns takes to heal?

This year for Lung Cancer Awareness Month, Lung Cancer Alliance sent out over 500 boxes of materials to cancer centers all over the country.  The box contained: a nice bright poster with suggestions on how to get support, get information and get involved! Bracelets with "Shine a Light on Lung Cancer" written on them. LCA temporary Tattoos. Fun bookmarks. 

Now here's the challenge: If you see this awareness kit set up in your cancer center, post a picture as a comment. We'll…

Finished five sessions of radiation treatment last Fri, for malignant nodule in lung. Have radiation burn on back. It started out as itch, then burning. Large red area. Have used just Aquaphor on it so far. Anyone have experience with this?

LCA has had a very active Phone Buddy program for about 15 years. Through the Phone Buddy program, we match people who are going through lung cancer with a person who has "been there, done that," someone who had had a similar experience and can provide support. We match based on the type of lung cancer, stage, treatments, and sometimes other requests such as age, married, living alone, with kids at home...whatever the specific need. Phone Buddies are available to talk to the person, share…

Hi everyone,

I'm sorry I've been away and not active over the last few weeks. We've had all sorts of activity at LCA headquarters as Maureen, Miguel and I have been hard at work assembling and mailing out 500 boxes of goodies to cancer centers and hospitals all over the US in preparation for Lung Cancer Awareness Month. 500!!! That's a lot of boxes! It has been exciting but exhausting and I've gotten very very behind in other things as a result. But we are almost done sending…