All Blog Posts (230)

In 2011 I was diagnosed with Bronchio Alveolar and Adenocarcinoma. Had a Lobectomy for the left lung and wedge on the lower left. Was treated after the surgery with Radiation and Chemo (Cisplatin and Alimta). Found out yesterday that the Adenocarcinoma has returned and numerous nodules (3/4mm) have grown throughout the remaining lungs. Last scan was three months ago showing their presence for the first time in six months. The recommended treatment is Carboplatin, Taxol and Avastin. I did not…

My mom (80 yrs old) was diagnosed with stage IV non small cell lung cancer in 2007. After 7 months of Taxol and Avastin, she couldn't continue. Drs began giving her Tarceva, which she takes daily. The cancer has decreased and she is doing well, but she often deals with a harsh rash from the Tarceva. We are trying to find people who are dealing with the same side effects to better understand how to treat or avoid them.

Thanks, Jeannie

Has anyone had experience with the chemo drug Irinotecan (aka Camptosar)?  My husband's first three cycles of chemo were Carboplatin and Etopeside.  The follow-up scan showed that the cancer in lung and liver had increased by about 1/3 and a new tumor had formed in his shoulder.  He has now completed six more cycles of Carboplatin and Irinotecan.  Both following scans have shown the lung lesions to be holding stable, the liver lesions shrinking slightly, and the…

I'm pleased to find this site which is a bit more realistic about lung cancer, especially Small Cell lung cancer, than the general cancer boards seem to be.  I look forward to learning a lot and perhaps being able to share some things we have learned since Vince was diagnosed in August, 2012.  He will have his tenth cycle of chemo this week.

I'm 61 years old. l was diagnosed 4 weeks ago. Had my first chemotherapy session 3 weeks ago. Next week. Anyway just looking to connect to keep my sanity...

Hi everyone, 

I am posting this in case you are interested in contacting Lee Ann about this study. She's a PhD nursing student at Vanderbilt University! 

Amy

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Stigma and Lung Cancer Research Study at Vanderbilt University

We are pleased to announce an opportunity…

(From our President and CEO, Laurie Fenton-Ambrose!)

We did it! Wow, what a way to kick off 2013! This is an incredible day for the entire lung cancer community!

Last night, President Obama signed into law the first ever legislation requiring comprehensive plans of research action for high mortality cancers, with lung and pancreatic cancers given priority status for expedited attention!!

This landmark legislation, included in the National Defense…

First, thank you to those who responded to my blog regarding my mom getting the same cancer I have.

Today we had another procedure in preparation for a possible cyberknife.  The surgeon feels my mom is not a candidiate for a lobectomy due to her weight, etc. 

He is asking for another biopsy (one was done a month ago)...not sure I understand why.  He stated today "It is cancer" - and it's been almost two months since diagnosis (this thing is growing), then…

I am a 5+ years Stage IV NSCLC survivor having overcome various treatments, infections and side effects.

I have been on ARIAD AP 26113 clinical trial since March 2012.  I was on Xalkori for 22 months before that.

ARIAD has stopped the progression of my cancer.  It has some minor side effects.

I would really like to interact with others who are also on ARIAD.

Margot

HI, I AM ALMOST 5 MONTHS POST CISPLATIN (4X'X)AND 28 RADIATION TREATMENTS FOR STAGE 2A NSCLC.  IT'S DRIVING ME CRAZY. CAT SCAN 3 MONTHS AGO WAS CLEAR. COUGH STARTED JUST AFTER THAT. PULMONOLOGIST DIAGNOSED BRONCHITIS TREATED IT WITH PRENISONE AND BENZONATATE. THINGS IMPROVED. THEN I GOT A PAINFUL RASH ON MY HANDS AND STOPPED ALL MEDS. COUGH IS HERE STILL. IS THIS NORMAL? DOES ANYONE ELSE HAVE THIS?

Today, the House of Representatives passed the National Defense Authorization Act of 2013 Conference Report. This legislation includes the Recalcitrant Cancer Research Act, legislation creating new National Cancer Institute (NCI) scientific frameworks for the most lethal cancers. Lung and pancreatic cancers are given priority status in the bill. The United States Senate is expected to approve the conference shortly thereafter, at which point, the legislation will be sent to President Obama…

Hi everyone. I'm hoping to get advice from the "experts"

I had my upper lobe removed October 2011. Since then, I've had a cough that wasn't there before surgery. On October, I, this year I  ended up in the hospital because I couldn't say to words without huffing and puffing.

They ran ct, xray, blood test-nothing. Then they thought I might have whooping cough. Turned out I was exposed but didn't have it. 

I don't have COPD but can't stop coughing! I'm on prednisone,…

Research on the Use of Online Health Forums

The University of Melbourne is looking for voluntary participants in a research project on the use of online health forums.The aim of this study is to investigate how online health forum users from different medical conditions perceived information and people encountered in online health forums, and how the perceptions affect the use of online health forums. The study is conducted by Ms. Hanmei Fan (PhD…

Hi There,

I am 26 years old and my amazing mother is 58 years old. Shortly after her 62 year old sister passed of stage IV lung cancer, my mother was diagnosed with stage I lung cancer. January 2012 was a rough month as we were all trying to digest one family member passing and now another is traveling down the same path. March 2012 we were notified that the cancer actually traveled from her lung to her brain and lymthnodes and it was in fact stage 1v cancer. On my 26th birthday, I…

Hello all.   I am having a problem with back pain that feels as though I have a dagger inserted going through my back (from the pneumonectomy scar) to my right chest. While I've been diagnosed with two small spots of cancer on my ribs (metastes from lung), my oncologist assures me that they are not causing the pain. December will mark two years since I had my right lung removed and I'm grateful to be living a fairly normal if somewhat restricted life at this point however, I cannot get…