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Frustrated, hopeing someone can help me with this if they have went throught all of this...thank you

Going to try to some this up as short as possible, so please bear with me...This all started the weekend of Labor Day..I started with this different discomfort pain that would come and go It was right under my left breast, and only in one spot..The pain and discomfort kept getting worse and worse..By the third week I could not take it anymore..I could not breath in with out feeling I was going to collapse..I honestly thought I pulled a muscle and was not doing anything to let it heal and was only making it worse..I decided to go into Urgent Care..At first the doctor agreed thought I was probably right, but just wanted to do a xray just to make sure..He came back and told me I had fractured a rib..I was that interesting as I have broke bones before and the pain when it first happens is the worst, then lets up and mine was doing the reverse..But, I thought to myself, he is the doctor and he would know better then me...He sent me home on pain meds...Thank goodness, finally some relief..I stayed in bed for a couple days finally and was just trying to give it time to heal...

 

     Two days later I get a call from Urgent care saying my ribs were fine, but it was actually a solitary pulmonary nodule and I needed to follow up with a CT scan...Two days later, the CT scan came back showing I had a 10mm in my right upper lung..The Urgent Care set me up with a oncologist in my area..I totally loved him, he sent me off for a PET Scan..Even worse news there...Not only the nodel in my lung, but also 3 lymph nodes that were affected...The pet scan lit up on the nodule and lymph nodes at a 11.7.The Oncologist stated it was lung cancer stage 3 bu the looks of it....He sent me to a thoracic surgery doctor..He was something else..totally crazy off the wall kind of guy..The one time even kept me in his office in a room for 3 hours just to talk to me for less then 5 minutes..They set me up with another thoracic doctor to do the bronchoscope..That doctor called me two days later and asked me to be at his office in 15 minutes..I did it...He told me this needed to get done RIGHT AWAY..He asked me to head right up stairs (office in the hospital) and he could do it right away..Go out to the front desk and the lady says no, please come back at 4pm for it..We got almost all the way home and they asked us to come right back the surgery room is ready...So we did just that..Got all the paper work filled out, gown on, and ivy waiting..then...a nurse came in and said sorry we have to cancel one of the other doctors is not here its here day off...well that ended my time with those doctors..All of that took over 2 months to happen to begin with..All I kept hearing is this needed to be done RIGHT AWAY...

 

     A week later I found another cancer center and they received all my files and I went to see him..he also stated that by all my prior testing, he is also believing it to be Stage 3 Lung cancer..Now mind you this is the 4th different doctor that has told me this..They also told me that no treatments could ever be started unless the biopsy comes back positive..Non of them were convinced that they would anyways, but they also told me they have seen infections do this on rare occasions..Rare because of how the lymph nodes were infected..not all on the same side I believe they said..

 

     He said he wanted to start with the least invasive testing which would be the bronchoscope..They found nothing in the operating room I was told..The test results came back and said I believe it was the back wash test came back negative, but the lymph nodes were inconclusive..So two days later I was back into the hospital for a Fine needle biopsy which the other quack doctor above said he would not do because they would not get a accurate reading with it being so small....Two day later the doctor called us in and said to come in..He said "be happy TODAY you don't have cancer, BUT, we still can't rule it out forsure, so come back in in 3 months..I totally lost it and cried..He asked why I was crying, I said 4 of you doctors said Stage 3 Lung Cancer, or a small possibility of a infection..He said well there is no infection either..of course I cried more..He just could not get it through his head that I was not crying because I didn't have cancer TODAY, but now I have to wait another 3 months to see if this crap grows..I asked about all the pain I am in, he said well maybe costo....something like that, I can't remember the total name for it..lol   He said just go to a pain management doctor...I said what about my breathing, he said I am sending you to a pulmonary doctor...So they set my appointment up for Jan 29 2014 for a CT...

 

     That very same day they got me into the breathing doctor and he put me on a breathing machine 4 times a day and a run of antibiotics for "just in case" the infection test were wrong also...Two weeks later I go back to him and all he said was I will see in Feb. all I was told to do with you was to put you on antibiotics and the machine..I said ok, well I thought since you didn't bother to ask me, I have been coughing up VERY small amount of blood while coughing sometimes..not with every cough..he said don't worry about it...I also told him the pain and I have no idea when from the biopsy needle is still very sore (4 weeks later) he told me not to worry about that...I also told him I have some weird pain that goes amost like a strip right across my upper back..Once again he told me not to worry about that (which I haven't, cause I have no clue what that is all about)....

 

     I already used up my second opinion with my insurance, has anyone ever had this like this were all the test come back positive except the biopsy...Oh the surgery doctor said the only other test they could do now what to go in surgically and he flat out refuses, because his words were if it turns out to be cancer and they open me up it can spread like fire...

 

     I am lost, feeling lonely because I know everyone around me is tired of me talking about it..They all feel I should stop being negative, which is really hard when your in pain and my breathing is getting some worse instead of better...

 

Please tell me there is someone out there that can give me advice or had something like this happen so I am not the nervous anxiety disorder person the doctor is writing all over my files..Gosh who would not be after all of this, and now having to wait...It don't make sense, lets wait and see if it grows,..errrr just so frustrated...

 

Thank you for taking the time to read it...

 

Judy

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Comment by cards7up on January 1, 2014 at 5:52pm

Scans do not confirm lung cancer, only a biopsy can do that. As for pain, with the size of the nodule at only 10mm, it would be highly unlikely that would be causing your pain. This is the size a 10 mm would be in inches 0.393701. I think this is what the one doctor was trying to say. Can't say I've heard a dedicated lung thoracic surgeon ever say if I open you up it would spread. How the heck else would they get it out! You're now closer to your next scan and hopefully whatever was there will be gone. Good luck, Judy

Comment by Denise on December 1, 2013 at 10:59pm
Wow. Quite an experience. First, infections and irritation can cause a pet scan to light up as bright as a suspected tumor. The latest ASCO numbers on that say 95% of nodules turn out benign. Standard protocol is to wait three months then do a new ct. If there's growth then re biopsy.

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