Hello everyone, I've been reading a few posts and I am very impressed by the grace and courage shown. This is a new subject to me and I really don't know where to bring it. I am just upset ,relieved and depressed about my diagnosis. I am a nurse and read about the study and using CT scan for early detection. I happened to have my every five year physical (I'm a bad patient) scheduled for the next week and I mentioned it to my PCP who told me it was not necessary, that my chest x-ray was normal and I had no symptoms such as cough or shortness of breath. We discussed it for a little bit and I left. He slept on it and came over the next morning(neighbors) and told me he changed his mind. So, off I go to get this CT scan ...I had my husband who is a MD come with me to talk to the radiologist. I was scared and knew they would find something and I didn't want to wait over the weekend for my results. My husband kept telling me not to be ridiculous, that I didn't have cancer. All I remember is standing behind the radiologist as she pulled up my scan and heard her say"oh". PET scan the next day showed only the area that was involved so I calmed down knowing that the right upper lobe was coming out. I had VATS surgery on March 26th at MGH. I cannot say enough about the skill of my surgeon and can say enough about the absolute neglectful and horrible care that I received from the nurses.... This coming from a fellow nurse.... Sad to see.
I am now exactly one month post-op, I came to Florida 2 weeks ago so I can walk and go in the pool. I do pool exercises about 2 hours a day without using my affected arm. I feel great except for this increasing pain in my right upper arm and scapula area. It felt like a really bad sunburn or I was having hot water poured on me. My surgeon prescribed Neurontin so we'll see how that goes. I'm still taking Vicodin 3 times a day which shocks me. I've had two rotator cuff repairs, back surgery and several hip surgeries and never took anything for pain after 2 weeks.
By the way, I know if I was going to get cancer, I'm pretty lucky my pathology is wonderful. As I said to my surgeon, this is the best worse news I can have. It is stage 1b.... The cells were mixed: adenocarcinoma, bronchoalveolar and acinar.
My anxiety is arising from the fact that there is still a "nodule" in my left lower lobe which they are concerned with.. I don't want this hanging over my head forever.
And, does anyone have a good response to someone who smugly asks me if I smoked?
I would also love to get involved in advocacy for early detection...any ideas?